Vicious Circle

It goes round and round. Each time the circle escalates and the effects grow more.

Stress causes Pain cause Stress

Oh, and add in depression.

It looks like this:

Image credit:
Image credit:

I have one month to find somewhere else to live.  At that time, the repairs to earthquake damage to my home will finally begin. Don’t get me wrong. Because I’ve been waiting nearly five years, I am happy that they are finally about to start. Very happy. The repairs will take approximately six months.

The biggest stress right now is that I hope my insurance company are going to help with the costs of shifting and somewhere to live. But they won’t tell me how they will help (I mean specifics beyond what the policy document says) until the insurance company doing the repairs provide a specific completion date. I’m waiting. And I understand because they can’t finalise exactly how long the work will take until they lift up the floor and see just how bad things are down there. Meantime though, what my insurance company want is a best estimate.

The reason that’s the biggest stress for me right now is because I can’t find somewhere to live until I know what assistance I’m getting. You see I expect to have to pay three to four times what I am currently paying in rent. Yes, three to four times! And that is more than I get in income each week. I REALLY need my insurance.

My current rent is low, thanks to my family who own the property. But equally rents in Christchurch have skyrocketed since the quakes because of demand for housing, and a little bit (that’s generous!) because many landlords have been mean and taken advantage of the situation.  The Government keeps reporting that rents are coming down again, but not when you look at what is advertised. Rent is still really steep. The demand for rentals is not as great as it was maybe two to three years ago. Repairs are getting completed and homeowners are moving home. But it’s still not going to be easy.

So there is plenty of stress in my life, and the vicious circle kicks in because, for me, stress is the biggest trigger to fibromyalgia symptoms. Stress equals pain. And pain equals stress because pain means I can get less done. And when pain goes on, increasing stress, then I start to get depressed. Or more accurately, more depressed. Oh, and add in fatigue… and an unhealthy amount of brain function. In other words I can hardly function at all and I’m hardly likely to come over as a great budding tenant to an agent or landlord.

This week I have been in a lot of pain all week (it’s Thursday here). I have rated my pain  as “being able to leave the house several times a week. Moderate to severe symptoms much of the time. Able to do about 2 hours a day of work at home or activity like housework, shopping and using the computer“.

I have limited activity to visiting my mother (she has Alzheimer’s and doesn’t really understand why I can’t visit her). I don’t know for sure but I suspect an Alzheimer’s patient works on the way many people choose to view Invisible illness. S/he can’t see it so it doesn’t exist. Maybe that’s a bit harsh, but I think it’s something like that. Certainly there is little understanding. From Mum’s perspective, I get it. Some others, I’m not so charitable.

Of course, Mum’s illness simply adds to my stress. Today I decided to say “no” and not visit her. I wondered whether by keeping up the daily visits, whether I was exacerbating my own illness.

There are actually more and more facets to my vicious circle. What I really need is that completion date and then the details of how my insurance company will help me. Right now insurance companies are not my favourite people…

Instead of focusing on the negative, the positive is that by mapping out that vicious circle I actually remind myself what is going on. Better yet, maybe I can stop it all winding up just through awareness. I know for myself that if I can limit the flow of stress then I can limit the onset of pain and depression. And that will make for a happier Cate. Anything for that!

PS. By the way, do you remember Lucy? Lucy is my music hallucinations, and she continues. This week she is louder and more invasive than ever. I’m starting to think that Lucy is also affected by stress.


Stigma Via Health Professionals

This is my latest post for A Canvas Of The Minds. It was posted yesterday. I apologise for my lateness in sharing.

“Am I alone with this? Have you been on the receiving end of stigma from health professionals, be it general health or mental health?  How have you handled it and what effect has it had on the overall treatment of your health issue? If it isn’t something you have experienced, how would you handle it if you came across such stigma?”

Read on at: Stigma Via Health Professionals

Thanks for reading




Hope… I’m Back Writing It

It was six months back, my Last Post.

At that time I was sure that this blog had done its time.  I had my reasons, and they were enough for me to sign off something that I had loved for three years. But I missed it.  I missed you, and in time a certainty grew inside me, that just maybe this blog hadn’t done its time. Now I know I want to be here again, and so I’m back.

You’ll see that there are a few cosmetic changes.  It was time for a facelift.  What remains are the daisies, and that’s because daisies have always been a symbol of what I want to be writing about.

It’s not just hope.  It’s about what daisies stand for. Look at the image above and think about daisies for a moment. The daisies grow almost anywhere. In the grass, they get trodden on, and perhaps worse still get decapitated in a lawnmower. Yet they keep growing back. They are completely resilient and keep growing almost no matter what.

What better symbol for a blog about getting through some really difficult times (both mental and physical illness) with a sometimes underrated thing called hope?

Hope is explained in many different ways.  I don’t think it is possible to put just a few words into one definition. Rather I believe that we each need to find our own definition. Something that means something to me (or to you).

Perhaps most commonly used as a definition is the phrase ‘Hold On Pain Ends‘. If that describes your situation and works for you, then that is something you can use.  But it doesn’t work for me for one reason: the pain doesn’t necessarily end. I have come to a point where I have realised that I have to find hope in spite of pain. I’m working on that.

A little over three years ago, I wrote this about my understanding of hope:

“It’s a specific belief that the future looks better and I can make a difference in my own recovery.”

Hope Is A Four Letter Word I Use Now

Maybe it doesn’t work for you.  Certainly other writers will have penned it better.  That doesn’t matter though, because what matters is that it works for me.

“Better than this”

It’s simplistic, but it’s manageable regardless what type of pain I’m in, and what degree of pain is my current reality. I know that ‘better than this‘ can be and so with that in mind hopefully I keep on going.

So how do you define hope? What works for you?

After six months of very little writing and almost no reading, it’s going to take me a while to get going again.  My reading is completely affected by my concentration levels.  Brain fog, courtesy of fibromyalgia, is to blame for that. As I am able, I look forward to getting back to your blogs. Please bear with me.


PS: You may notice that I’ve changed my gravatar (see to the right of the screen).  My old one didn’t work for me after three years.  This new one is formed from a photograph of street art built around construction sites in Christchurch, where I live.  I love it, and I believe that ballerinas must from hope in pain as much as anyone.

Further reading

A New Look at Daisy (Bellis Perennis)

Stand By Me… But Just A Few Will Do

When we live with chronic illness, either mental or physical, it’s all too often that we have to focus on those who don’t stand by us. Those who we thought were friends (or family), but don’t want to know us now.

Over the years there have been many friends like that.  They’re particularly those who didn’t like how I was choosing health treatment options, as if it was up to them.

Then there were those who objected to some of the changes I made in my life.  I can give you a whole list of those who run for the hills when I started smoking.  My overly enthusiastic drinking was always kept under wraps, so that never gave people the chance to exit stage left.  My self harm was also kept under wraps, or at least under my clothes so again, people didn’t have the chance to run.  When I stopped going to church, that was another trigger for some to go.  Over time, plenty just left.  They skulked away presumably just because I was different now.

My ex-husband was one of the first.  From outward appearances it seemed that I was the one who left him.  I was the one, after all who packed my bags and left the house.  My house. But that was only after several conditions that he laid down in front of me.  He wanted me to change, or I couldn’t stay.  I chose to leave.  I think he was surprised (did he think he was that good?), but I guess he got over it.

It’s easy to focus on those people who left.  Yes, it hurts very badly.  Yes, there were times I wondered if anyone would like me ever again.  There were great losses involved when any person who had been close… left.

Image Credit: Squelle,
Image Credit: Squelle,

But actually there were people who stayed.  Even when I tried to push them away.  While I was hurt by those who weren’t interested in being in my life anymore, strangely those who still wanted to be there, I pushed away.  I was scared that if I didn’t push them away, they might choose (after all) to leave.

The first friend who comes to mind, just kept on coming back.  I know the choices I made for my life were not hers.  I know that some of the choices I made, just made no sense to her.  But she kept being there.  I know some of the things I came to believe in were not her beliefs.  Actually I kept expecting her to walk away.  But she didn’t.  She kept being there.  Nowadays we don’t see each other often, but we can still add up 25 years of friendship.  We live in different parts of the country, and to some extent, we have drifted.  But I know she would be there if I needed her.  And to me, that’s what counts.

The other person who quickly comes to mind has been my friend even longer, and no matter how much I’ve pushed her away across the years, she too, is still there.  I remember not wanting to see her when she came to visit me in a psych hospital.  Visitors are few and far between in a psych hospital but she kept coming, even though I admit I would fake a headache or something so I didn’t have to see her.

Having done that repeatedly embarrasses me now.  It was a long drive to come out to see me, yet I would regularly refuse to see her.  It was really about hating myself so much that I couldn’t bear to be seen.  I understand that now, but I still don’t know if she understood it.  Maybe not.  But she continues to be my friend. Again different parts of the country now mean we don’t get to talk often, but we caught up recently and it was great.  I felt completely accepted, just as I was.  What more could I want?

I don’t have a lot of friends now.  Just a few will do.  Should I say, I don’t have a lot of what we call ‘real life friends‘.  That’s partly been my choice, partly people who have left, and partly something that has come about because of the illness.  People leave just because they don’t ‘get it‘.  Even ‘internet friends‘ I’m not interested in having hundreds of friends.

What I am interested in having is friends like those above, who I know will stand by me.  As cheesy as it sounds I want friends who will be there for me, and will allow me to be there for them. I’m not interested in anything else.  I just don’t see the point.  Judge me and I’m simply not interested.

I think age helps.  In your twenties I get that it’s maybe hard to say a few friends will do.  Even harder to be satisfied with staying in on Saturday nights.  It’s hard again to have a quiet feed on all social media sites.

When I hurtled violently into the world of mental illness, I was in my twenties.  Sometimes it’s hard to remember that I’m not there anymore.  Frankly though, I’m glad I’m not.  Quantity doesn’t matter so much now, I’d rather have quality, or at least those who will stick around no matter what I hurtle through.

It’s a little bit cheesy now, but it’s true, so here it is…

“When we honestly ask ourselves which person in our lives mean the most to us, we often find that it is those who, instead of giving advice, solutions, or cures, have chosen rather to share our pain and touch our wounds with a warm and tender hand. The friend who can be silent with us in a moment of despair or confusion, who can stay with us in an hour of grief and bereavement, who can tolerate not knowing, not curing, not healing and face with us the reality of our powerlessness, that is a friend who cares.”

― Henri J.M. Nouwen

To Cope


Pronunciation: /kəʊp


1(Of a person) deal effectively with something difficult:

his ability to cope with stress; it all got too much for me and I couldn’t cope

(Source: Oxford English Dictionary)

And now that the English lesson is over for the day, let us get on to more meaningful issues around this word.  Like how do we cope?  What coping mechanisms do we use in order to get through life?  Are those means of coping, healthy or otherwise?

But here’s the catch… I don’t want you to tell me how you cope.  I have enough dealing with my own means of coping.  Tell yourself, instead.  Tell yourself what coping mechanisms you use to manage physical or mental difficulties.  Maybe you have both and so you need to tell yourself about both.  And check with yourself, are they healthy or unhealthy?  And perhaps more to the point, does it matter?  Be honest with yourself.  Know what it is that keeps you going.

And now I will get on with my post. I have had a means of coping with a particular aspect of my life, for a very long time.  Actually I have used this means for as long as I can remember.  I’m talking pre-school.  I can’t remember when I didn’t do this as a way to cope.  This is a very longstanding way to cope.  And it worked.  First as a child, and then as an adult.

There are only two occasions in my life where this coping mechanism of mine was denied (for want of a better word).  Actually they were similar but different.  One involved me sharing some small detail of my means to cope with another, and that other using it to abuse me.  Obviously that didn’t work.  The other refused to accept me if ‘me‘ included that means of coping

Both times I had to weigh up what was more important, my coping mechanism or the people involved.  Both times it required a potentially life-changing decision.  These people insisted I remove the coping mechanism from my life in order to have some type of connection with them.  Actually I chose my means to cope with my life, and it hurt like hell.  But… I never had a doubt that I had done the right thing.

For a third time, this week my means to coping was challenged.  Actually it was more than challenged because of the environment involved.  This time my means of coping was totally chucked out and I was told I ‘couldn’t use it anymore’.  Gone.

If I could go into details, then I could go some way to explain just how devastating that has been.  I can’t.  But maybe it doesn’t matter so much because perhaps my feelings are what are important.  I’m not sure if I can adequately put those in a few words but I will try.

Hurt, denied, shut out.  I was fighting for air to breathe.  Literally my means of life was being denied.  It hurt to the extent that it felt my skin was being peeled off.

I know that it is difficult to comprehend, but go back to your own means of coping.  Maybe one you used from childhood, or something you had to do to keep yourself alive as an adult?  One that actually meant a difference between life and death.  Now have that taken away from you, by someone important in your life.  Maybe it’s happened to you already.  Can you see now a little of how I might feel?

To be honest, I spent most of the week in denial.  There was too much to do, people to face, it couldn’t work any other way.  It simply was the only way to handle it, without totally losing it.  But then I had to go back to the person who did it.  That’s where it felt like my skin was being peeled off all over again. Fuck!

And I felt myself crumbling, not sure if myself even existed anymore…

“You think you’re lost but you’re not lost on your own. You’re not alone. I will stand by you, I will help you through when you’ve done all you can do.
If you can’t cope, I will dry your eyes
I will fight your fight, I will hold you tight and I won’t let go”

— Rascal Flatts

Good Intentions

I had good intentions.  You know when an event is coming up and for once you’re organised?  Each day leading to the event is planned?  That’s how I was with Christmas this year.  I knew what I had to do, I had most of what I had to do done.

But then I got a phone call on Monday morning.

It changed all that.  While Christmas still happened (like such events have a habit of doing regardless of what we have happening in our lives), Christmas changed.  The days before, and the days afterward changed.  I think I’ll remember this Christmas.

I had already come to the conclusion that Christmas this year would be about family.  For once, I was actually looking forward to the day.  I don’t usually.  I’m one of those people who would rather ignore the day.  Usually I grudgingly do the things expected of me, but mostly detest this celebration… for a number of reasons.  This year was going to be different.  Somehow my mindset had changed just a little.

Early Monday morning I got a phone call to say my almost-87-year-old mother was not well.  I wasn’t yet dressed but threw on the nearest clean clothes I could find, and drove over to Mum’s flat in a nearby retirement village.  And there began a search to get help for her.

To be honest, I wasn’t quite sure what to do to begin with.  We are all fairly new to all this.  Thankfully I was able to get some quick advice and then acted on it.  Many phone calls later, Mum had an emergency appointment with her doctor in a few hours.  That followed with more appointments.

I can tell you that a few days before Christmas is not the time to seek help from health professionals.  Everyone wants to see them, but luckily those involved made room for mum.  Unfortunately the problem wasn’t solved and the conclusion was eventually that family would have to provide the care Mum needed.  That basically meant me!

What followed was three nights on Mum’s couch.  The most uncomfortable sofa bed I have ever had the misfortune to attempt to sleep on.  I have now spent seven days with Mum, although we agreed that she didn’t need me so much at night and that because my back was now extremely sore, I have been home at night.  I only live five minutes away and I can easily jump (if my body lets me) in the car and go back (as I have had to do).

Nearly a week on, Mum is doing better although is not herself.  I wonder whether I will ever see that ‘herself‘ again.  I don’t know.  That’s the nature of the illness.

I will continue to spend days with my mother, and then on Wednesday she will move to a rest home, providing residential care for the elderly.  This is something that was already planned.  This past week we tried unsuccessfully to move Mum early.  It didn’t happen because… well, I won’t get into that here.

That is the short story.  The purpose of sharing it here, as well as to simply write out for myself what happened, is that it very much fit with what I had already been thinking of for Christmas, and what I had intended to post about on Monday.  Obviously it didn’t happen.

Image credit: Permission obtained from Penny Redshaw http//: motivating

I am sharing this image firstly because I love Penny’s blog.  Somehow, without my involvement (obviously… it is not my blog) she illustrates what I am thinking.  Amazing!  I also love images of giraffes.  I’m sure I would love giraffes themselves but there are not many in this country.

For some weeks I have been thinking about what is important for me at Christmas.  My thoughts came from a disappointment that I simply wasn’t going to be able to give my nieces and nephews gifts this Christmas.  I had no money as a result of not only a very small income but also because of some recent very large and unexpected bills.

I started (a few weeks back) to feel pretty down about this, not to mention embarrassed.  I had to shift my thinking somehow, and I started to do that with Penny’s statement in this image.  Remember what is important.

What is important is that I am alive and can be with at least some of my family.  The niece and two nephews who I would be with were really what mattered.  But that doesn’t exclude the other family members I would also be with.

When my mother got sick this week, it gave me a new appreciation of the fact that I still have her, and that regardless of her illness she would (and was) with us on Christmas Day. Who knows how long she will be with us? I had to take her presence on Thursday as another thing that mattered.

It’s been a long, hard week.  And it’s not over yet.  My fibromyalgia is screaming, as are side effects of a new medication which made it almost, but not quite, impossible to get down on the floor and do jigsaws with four-year-old niece L.  Getting up afterwards was even harder.  But it was fun, and that was what was important.

Hey, life goes on and I have a new appreciation of what’s important for me.  It didn’t matter that I hadn’t given gifts.  I suspect the teenagers might have objected a little, but they didn’t to me.  We just had fun together, with their Grandma quietly looking on.  I wonder what she was thinking.  I know I’ll never know

But that’s what’s important to me right now.

 “My dear young cousin, if there’s one thing I’ve learned over the eons, it’s that you can’t give up on your family, no matter how tempting they make it.”

― Rick Riordan

What I Did And Didn’t Want

Do I exaggerate? That’s a rhetorical question for most of you.  My family (who might or might not be reading) are welcome to try to answer that question but you must be kind.  Very kind.  Your purpose in attempting to answer must be purely to educate me and not to, in any way, attack me or get back at me for some random, unrelated misdemeanor.  The question is really one for myself if I am completely truthful.  It won’t be the first time I try to answer, and it certainly won’t be the last.

I just have got the impression over the years that those people close to me have the impression that yes, I do exaggerate.  Personally I don’t think I do.  I think that I feel things strongly and that I notice a lot of what is happening around me.  Perhaps more than others.  But when I express it, it’s not exaggeration but simply what I am seeing and/or experiencing.

This past week I have been through a lot, and for some of the people around me, they have been through even more.  It has been really hard.  Emotional, soul-searching and stressful.  And no, that’s not an exaggeration.  It has been hard on us, and it’s not over yet.  Actually in some ways I suspect it is only just beginning.  For some of us, it has been something that we always knew might happen, going even as far back as childhood.

It comes down to what I did, and didn’t want.  Clear as mud, I know!

It’s always important to me that just because I am a blogger, that doesn’t mean those around me must have their lives printed here too.  As such, there are no details.  If you’ve been reading my blog for a while, you will know that is how I sometimes write in order to protect the privacy of those people.

For what seems like a long time, I have been very concerned about something that others around me seemed to not see.  Of course, we see not only what is apparent but also what we are open and willing to see.  In addition, we can only see what is there.  If it comes and goes, if at times it gets hidden, it is pretty hard for others to see.

No one has said it out loud but I got the impression that they thought I was exaggerating.  Maybe they thought that was because of my mental illness.  I don’t know.  No one has ever said.  Maybe they thought I was simply too emotional and reacting too strongly to what I could see.  Again, I don’t know.  No one has ever said.

This week finally, some other people told me that they could see what I could see.  Wow!  That was such a relief (in some ways!).  As I watched them, watch what was going on, I was quietly terrified that they would say they couldn’t see it.  They didn’t.  They could see it clear as day.

It’s hard because I wanted them to see, but at the same time I wanted to be wrong.  I know that will make little sense, but I guess it’s just human nature.  I wanted to be right, but I also didn’t want to be right.

I was right, and actually those other people assessing what was happening, were even more concerned than I was.  I didn’t know how to feel then.  I wasn’t quite ready for the depth of their concern, even though I was glad they could see and were concerned.

What had been sometimes unspoken, and sometimes barely whispered, had now come amongst us.  I had really hoped it never would.  Others around me had hoped it never would.  Even those who had passed on hoped it never would.  But now, here it was, and there was no denying it… for any of us.  I got what I wanted.  I wanted others to see.  But now I really didn’t want what I had got.

I can’t wind back the clock, and that is painful.  I want the clock set on today when everyone concerned can see what I see, but I so don’t want it.  It’s totally thrown me off-balance, even though I wanted this, I also knew that what I wanted was the last thing I would ever want.

If you’re confused, then I apologise, but just imagine how I might be feeling with all this in my head.

I think I need a rest.

“Because that’s life, you know? Good and bad. You can’t have one without the other. The bad brings out the good in us, and the good can be corrupted by the bad. It’s always a struggle—to fight for the good, so it tips the scale. – Jet Phoenix”

― Rachael Wade, Repossession


Why Can’t I Have Both?

It’s been a while… I know.

It’s just on two months since I disappeared off the blogging trail.  No explanation, just not there.  My apologies for the ‘no explanation’, but it just had to be.  The short story is that I came to a point where it was necessary for me to question whether my participation in the blogosphere was helping or hurting me.  Was I getting out of blogging what was good for me, or was it actually causing pain?  Ideally it would be great to say my participation couldn’t possibly be hurting me, but that’s simply not true.  I have yet to resolve the issue in my mind, and so in the meantime I will only be posting sporadically, when something is weighing particularly heavy on my mind.

I admit too, that pulling back in my participation has also included cutting back on how much I have been reading others’ posts.  That has simply been too hard, particularly with writing comments.  But I do still have a desire to support the blogs I follow and I will be back eventually.

Meanwhile, a dilemma falls before me.  It’s not one that is new to me, but perhaps this time it is a bigger issue because of the consequences involved.  Two options are before me and I wish so much that I could have both.  Unfortunately it doesn’t always work that way and particularly in the issue of mental health versus physical health.  So often it seems the option is one or the other.  Why can’t I have both?

This past week I finally got in to see a Pain Specialist to consider how best to treat my Fibromyalgia.  I’ve been waiting for this for several years now, so it was so great to finally be there.  Regular readers will be pleased to know that I also finally changed my doctor (General Practitioner) a few weeks back.  That, and seeing the Pain Specialist has finally given me some hope that treatment is possible.  Unfortunately though, it looks like it might come with a cost.

The Pain Specialist has recommended a medication for me to try, which if it works for me, could turn my life around in terms of the pain and fatigue that I have on a daily basis. What the medication recommended isn’t important to this post as the last thing I want to do is get into a conversation of ‘what works for who‘.  I don’t see the point in that simply because we all respond to medication differently.

It was not possible for me to start on the medication straight away as it was necessary to get funding approved from the New Zealand health system.  The hope was that by the end of next week I would be able to start.  It would take some weeks to get to optimum dose and so to work out if it was effective.

It was all sounding great, until I came home and did my own research on the drug.  I am particularly careful to read up on medication I intend to start on because of firstly adverse interactions with other medication but also because of those lovely side effects we all dread.

The interactions were listed as moderate, but I had discussed it with the specialist and we agreed that with careful monitoring it would be ok.  But the side effects were different.  All the usuals, including my dreaded weight gain… but here’s the one that stopped me in my tracks:

“you should know that your mental health may change in unexpected ways and you may become suicidal (thinking about harming or killing yourself or
planning or trying to do so)”

Added to that was:

“….panic attacks; agitation or restlessness; new or worsening irritability, anxiety, or depression; acting on dangerous impulses; difficulty falling or staying asleep; aggressive, angry, or violent behavior; mania (frenzied, abnormally excited mood); talking or thinking about wanting to hurt yourself or end your life; withdrawing from friends and family; preoccupation with death and dying; giving away prized possessions; or any other unusual changes in behavior or mood”

It speaks for itself.

I know that this is not the first, or only, medication that has these possible side effects.  There is the well-known anti-smoking medication which I have always said I would never risk taking because of the possibility of suicidal thoughts.  Then there are of course, many anti-depressants and other medications for mental illnesses which have similar risk.

I know that.   I don’t like it.  I think it is crazy, but I know that’s the pharmaceutical world we live in.  What bothers me is that I am stuck between a rock and a hard place.  Yes, these are possible side effects and might not happen but I have to be prepared for their possibility.

For just a few hours, from leaving the Pain Specialist to getting home and doing my own research, I had some hope for the possible end of my pain (or at least significant reduction).  I started to think about being able to get back to work, and was even mentally rewriting my out-of-date CV.

This drug offered me hope… but at the expense of my mental health.

Do I restore my physical health while risking my mental stability?  Or do I say no to the drug, continue to be limited in my physical health, but be sure my mental health is maintained (at whatever level it is currently at).

This is a really hard one.  Yesterday I was by chance reading Lulu’s post on her blog Sunny with a Chance of Armageddon on a similar issue she was facing. Which do we preserve?  Mental health or Physical Health?  It seems that this is a common dilemma we face when we have mental illness, and I’m coming to the conclusion that we each have to make our own decision.  For each, it will be different.

Personally, while I haven’t reached a decision on my dilemma, my inclination right now is to preserve my mental health (which would practically mean avoiding this particular medication).  While my mental health is relatively stable now days, I continue to struggle.  I have been at the bottom of the pit in terms of mental illness. Years of hospitalisation, heavy medication, ECT and the many harmful things I did to myself including suicide attempts.  I had suicidal thinking for a very long time.  I have no desire to go back there.  I suspect I would find it difficult to crawl out of the pit again.

Do I try for stable physical health?  Or stable mental health?  I hate the way my life is dominated with pain right now, but perhaps surprisingly, I think I would rather have that physical pain than to go back through the mental pain I lived with, the worst of which was through the late 1990’s.

On Tuesday I will see my (new) doctor and talk to him.  Maybe I’ll find the cash and go see my rather expensive psychiatrist too.  The problem for me is that while my medical notes are full of mental illness, none of the doctors involved knew me at the worst of my mental struggles.  They haven’t seen that Cate.  They don’t know how bad it can get for me.  I do.

There are no guarantees in this game.  I could have no side effects and get good pain results too.  It just might not happen… but I’m not a lottery player and even so, I just don’t like my odds.

But forget about my dilemma for a moment…   what would you do?  Maybe you’ve already faced this issue.  How did you deal with it?

“No amount of love can cure madness or unblacken one’s dark moods. Love can help, it can make the pain more tolerable, but, always, one is beholden to medication that may or may not always work and may or may not be bearable”

— Kay Redfield Jamison (An Unquiet Mind: A Memoir of Moods and Madness)

Facing The Mundane Realities Of Chronic Illness

There are some things which are obvious about chronic illness, although admittedly when it is an invisible illness even those obvious things are hard to see and be aware of.  I don’t mean for this post to be a ‘moaning Maggie‘ post, so forgive me if you think I am heading there.  But this is on my mind.  With most posts I publish it is my desire that people read them (ok, I’m stating the obvious), but this time I admit that the shame involved in posting leaves me with mixed feelings.  Yes, I want you to read but yes, I am ashamed of what I say.

I read awhile ago that Fibromyalgia doesn’t kill you but you just keep getting sicker.  I don’t know if that is true, or another internet rumour, but this past year certainly seems to have been worse than before.  I feel a bit like fibro has become just one long line of flare symptoms, with little or no break.  My head seems in a permanent fog.

On Tuesday I have a small army of people coming through my house to do yet another assessment of earthquake damage left from 2010/11.  Yes, you’re quite right.  That was a long time ago but recovery takes… forever it seems.

They always promise ‘minimal disruption‘ but around ten people going over (and under and through) the house with a fine tooth comb is not ‘minimal disruption‘.  That’s ok though as I am just happy that someone is doing something.  Maybe one day there will be a decision on just what to do with my poor home.

From many of these assessments before, I am fully aware that they will see everything… including the fact that my house is not just untidy, but also unclean.  And yes, it’s got to that stage where it’s plainly obvious.  I am ashamed at the state of the place, but it has become like that simply because my fibro has been bad enough to prevent me from doing housework.  I also know , like a promised added extra, that when I actually get to cleaning it is likely to land me in bed for a week, simply from the effort involved.

So why am I telling you about my shameful dirty house?  Because if you looked at me you wouldn’t see a reason why I couldn’t have kept on top of it.  I look healthy.  I look able.  I look like there is nothing wrong with me.  Yet I can’t keep up with what is simply a small two bedroom house with only one person to mess it up.

I don’t have a lot of people come to my house usually.  I admit to being somewhat of a hermit.  I have no idea of what judgements those who have been here lately will have made of me.  There is always silence.  And uncomfortable silence where you wish to god that they would just say something.

Right now I am very aware of the judgements that this army of people might make on Tuesday.  Yet there is very little I can do about it.  I can hardly stop them at the door and say “BTW excuse the mess, I have fibro“.  I really don’t think they will care for excuses.  You see, I look fine and so the judgement will be made that I am fine, but lazy.

That old adage “don’t judge a book by its cover” applies in so many ways.  If you walk into someone’s house and notice it is unclean and untidy, stop to think that there may be a reason.  Most of us don’t choose to live in such a state, but some of us find ourselves having to.

You see, apart from when ten people are about to come through my house, I can kind of overlook the state of my home.  I don’t like it, and I would love for it not to be the reality, but my priorities are largely my health and my mother’s welfare.  After those, if I have no wellness and energy to deal with housework, it simply has to be as it is.  I’m learning to live with it, even though I will probably never like it.

It’s not just chronic physical illness that can prevent us from staying on top of such mundane tasks.  Mental illness can too.  Certainly for some people with mental illness, they can find it therapeutic to do those things but for others, it is simply too much.  For some, their illness can be affected by the state of their home, but for others illness almost keeps us from seeing the obvious.  Actually I have no difficulty in seeing the obvious today.

We need to find ways of being kind to ourselves.  I could choose to beat myself up about what I can’t do right now.  It would make sense as more than likely I am going to be judged by it shortly. But this time I’m trying not to get stressed.  If cleaning happens, it happens… and I’ll probably spend the rest of the week in bed.  If I can’t do it, so be it.  It won’t be the end of my world.

And now comes the big question… do I publish or not?  This is, afterall a post about housework and my unclean house.  Can I swallow the pill of shame in order to say out loud that this happens.  It’s real.  Actually I bet it’s real for many more than just me.  Maybe it’s not the housework.  Maybe it’s some other mundane reality of chronic illness.  We can talk about the illness, but there’s more to it than just symptoms.  There are all the realities of just keeping life going.  The best we can do for each other is to be real about them.

“When you argue with reality, you lose, but only 100% of the time.”

― Byron Katie

Cure Me, I’m Depressed

Recently I had the opportunity to watch the UK television documentary Cure Me, I’m Gay in which a gay doctor (Dr Christian Jessen) subjects himself to a whole range of treatments and therapies designed to cure homesexuality.  Wow!  I chose to watch it because I find it interesting that some people can see their role as to judge others (who are doing no harm to anyone else).  Personally I find it sad, but that’s me.  I know many people will disagree with me, and that’s okay too (although it’s not really the point of this post).

Let me be clear that no one has ever seen the need to, or tried to cure my sexuality (that they told me anyway) but they have tried to cure my spirituality.  As I watched the Cure Me, I’m Gay programme there were elements of familiarity that sprung up unexpectedly for me.  I realised that back when I was first being diagnosed with mental illness, in some ways I was put on a journey of ‘Cure Me, I’m Depressed‘.  It was all seeming a little familiar to me when I watched the last ‘treatment‘ that Dr Jessen underwent.  That of exorcism of evil spirits and demons.

I should add that at the age of about 15 I witnessed an exorcism of demons from a girlfriend.  I wasn’t meant to be there (judged too young to see such things) but circumstances determined that I had no choice.  The Christian people praying for this were doing so because they believed a demon was the cause of her chronic suicidal thoughts and self harm.  What happened that night was dramatic and downright terrifying for 15 year old me to watch, especially when it was my friend it was being ‘done to‘.  It was something I will never forget, and frankly wished right then that I didn’t have to watch.   Did it work?  Others there told me it did but I had no knowledge on which to base a conclusion.  That said, my friend is alive and well today and eventually overcame that part of her life.

The apparent existence of evil spirits and demons in my life was seen by some as the root cause of my depression.  I should add that I was also being treated for Anorexia Nervosa and Post traumatic Stress Disorder (PTSD) but most people (including those who were taking this approach) were either not aware of that or ignored it.  I might have been literally skin and bone but mostly this was either ignored or actually praised (many thought and said that I looked great and that my diet and exercise regime must be working really well). I suspect they would have had a field day if they’d known of the other issues.

So the focus was on the depression.  As I’ve said before, I was an active Christian at the time and had grown up in a Christian family (although it wasn’t my family that were involved with this search for answers to my decline in mental health).  I knew very well that there were many people praying for me, although I had little idea of what most were actually praying for.  I appreciated their commitment (mostly) but left them to it.  I had no desire to join this prayer effort.  At the time I was sure that nothing, including prayer, would save me.  I simply knew that for many Christians to be able to tell a person that they are praying for them, absolved them of any other responsibility (is that too harsh?) and also put their mind at ease.  They’ve done something to help.  They don’t feel quite so helpless.

My (soon-to-be husband) was very anxious to find a spiritual reason for my illness (the cynical me would suggest that he took this approach to get the heat off his role) and arranged for me to see a Catholic (BTW I was not Catholic) priest who was well known in the city where we lived for having a “successful healing ministry”.  There were about five people in the room including this priest.  Before they prayed I was asked many questions in their attempt to understand the evil forces that were apparently in my life.  They were keen to know how I had sinned and how I might have let ‘the Devil‘ into my life.  They eventually found no reason why there should be such forces in my life until they started to question me about my family background.

The short story is that my grandfather had been part of the Freemasons during his life (by this stage he had died and actually I don’t think he was a part of this organisation during my lifetime).  Some Christian people believe that the Freemasons are some type of secret, evil religion and according to the people I was with that day, they were a completely evil influence.

I was told that it was my grandfather’s fault that I had Depression, and from memory I think they prayed for me that ‘the evil spirits let into my life by my grandfather‘ would be gone.  There was so dramatic exorcism this time, maybe because I was sitting thinking  ‘how the heck can my grandfather who loved me and would never, ever have done anything to hurt me… cause this?’  My heart was definitely not in what they were doing, and no doubt if I went back and questioned why I wasn’t healed of Depression, it would have been my fault.

I don’t believe for a minute that my grandfather contributed in any way to my mental illness.  He would have been devastated to be blamed for my suffering.  Furthermore I think it’s sad that they searched until they had something to hang a nail on, but never once asked me anything that might have lead to the real reasons for my mental illness.

While I do believe that there can be a spiritual element to mental illness, I don’t and never did, believe that to be the case for me.  At the time I probably couldn’t put words to the reasons for my emerging mental illness, it took years before I could even begin to find words.  Now that I have a much better understanding of my illness, I know it was nothing to do with spiritual forces and more importantly nothing to do with my grandfather.  They were grasping at straws, and in my mind were doing so dangerously.

Much like the documentary on homosexuality where ‘therapists’ seemed to be grasping a straws too.  Homsexuality was apparently caused by sin and/or abuse.  It all leaves me sad for those who must carry the weight of those straws.

While I was an active Christian for more than half my life, I have since removed myself from any organised religion mostly because of my experience as a person with a mental illness trying to be find a place I would fit.   I still hold Christian beliefs but they are personal, and I have no desire to push them onto anyone else.

I see my own spirituality as a personal expression of belief and I respect whatever beliefs you may or may not have as your right.  All that said, I write about my experiences such as that above, because it has been a major influence in my life and I admit, some of the force behind my illness.  It’s not something I want to deny.  Nor do I have much desire to get into a criticism of beliefs different to my own.  I hope that I have largely avoided that here.  It is simply that what I have  labelled the ‘Cure Me, I’m Depressed‘ approach to my mental illness did not work for me.  That said, if a similar approach has worked for others then I am happy for them.