Lucy In The Sound Dome With Diamonds

I’m not about to debate the true meaning of ‘Lucy In The Sky With Diamonds‘ by the Beatles, but it sprang to mind when thinking about writing this post.  Am I seeing diamonds in the sky?  No.  But the popular belief that the song has something to do with drug-laced hallucinations is appropriate.

No, I’m not doing drugs.  Well, not anymore than the small mountain of prescribed psychotropic and pain medication.  I am, however, living my life in a sound dome.  Where I go, it goes.  It’s actually very clever.

The connection for me is that I’ve been having hallucinations for six weeks now.  I am hearing music that is not there, nor can anyone else hear it.

I’m not seeing things, but I am hearing plenty.  Plenty of music, that is.  And while we’re about what ‘is‘ and ‘isn’t‘… I’m not psychotic (confirmed by a doctor!).  This is nothing to do with my mental health, although it’s fair to say that as time goes on, it is having a great effect on my mental health.  The music hallucinations I am having are related to my ears, and not some psychotic illness.

If you want to know more about music hallucinations, you can do your own googling.  What I want to talk about is how these auditory hallucinations are doing my head in right now.

You might think that six weeks of music that is almost constant in my waking hours, would be welcome, especially if you’re not having to pay for it.  But actually this is anything but welcome.  Let me explain:

  • I don’t have any control over when it plays, or at what volume;

  • I don’t have any control over what type of music plays.  Right now, I being inundated with full ensemble, church music.  Yes, that’s hymns, mostly with orchestra, choir and at times, a full pipe organ.  It’s not the type of music I would choose and actually having such a full exposure to this in my earlier life, it really does nothing but press emotional buttons;

  • I don’t have control over the quality.  I regularly hear wrong notes and off-key singing.  I regard myself as enough of a (even if lapsed) musician, that I find the errors mostly offensive.  How about when the instruments aren’t in time with the voices?

  • Sometimes my brain gets really clever and plays two separate tunes at once.  That’s fun.  Actually no it’s not, it simply becomes noise.

I don’t know why my brain/ears are choosing to do this.  That’s slightly freaky especially as with time, it seems to be getting worse and louder.  I’ve had a medical opinion (as I mentioned in What’s Fair?) but I’m still waiting to see the specialist.

Musical hallucinations running about 95 per cent of every day are also affecting the rest of my life.  Again, let me explain:

  • As an introvert, I like my silence.  Oh, how I miss it.  The only thing that successfully drowns the sound is the television (as long as I totally focus on it and don’t just have it as background noise).  But then that’s just more noise.

  • As someone who is hearing impaired and who has worn hearing aids for the past six years, I also find background noise stops me from hearing the things I need to hear.  Now days I don’t often listen to music for this very reason.  But now I am overloaded in background noise flowing from my left ear;

  • As someone who needs plenty of sleep, I need quiet.  I am trying to use a Sleep App and while that generally works for me when I am dealing with a loud case of tinnitus, with the hallucinations I just find the Sleep App creates more noise.  Oh, if I could temporarily amputate my head and leave it in another room!  Okay, I’m only half joking;

  • As a fibromyalgia sufferer, I need stress-free everything.  With an increase in stress, partly because of the noise and partly because I don’t have any definite knowledge of what is really going on in my head, that all adds to more stress in my life.  That is resulting in more pain, more fatigue and what seems like permanent brain fog.  None of that is good or welcome;

  • As a reader (yes, including your posts) I simply can’t concentrate to read when I have this noise going on.  I’m not sure if that is a by-product of past Electro Convulsive Treatments (ECT) or the brain fog related to fibro.  What I do know is that I am really struggling to read anything;

  • As a writer (and blogger), the same applies.  That’s part of the purpose of this post to explain to you why I haven’t been posting regularly.  I apologise, especially to the many who have recently followed me.  There’s nothing like following a blogger and never getting any new posts to read.  Today I am using my trusty Sleep App again as I write.  It’s not really working, so if this is the most poorly written of all my posts, you’ll hopefully understand why;

  • And finally as someone with a small pile of mental illnesses.  I started to realise last week that these hallucinations are affecting my mental health.  I’m fighting not to slide back into Depression.  Some of the worst of my Borderline Personality Disorder (BPD) traits are rising to the service and I find myself constantly argumentative and irritable.  Trying to withstand idiots has been beyond my ability at times, and I want to change the world… NOW!  Oh and one more thing.  It doesn’t seem related but I have absolutely no interest in eating right now.  That’s not good for someone with a history of Anorexia but I’m watching that one. Right now all of these issues have me taking a break from Social Media (except for WordPress).  Hopefully that way I won’t offend anymore people.

That’s probably more than you wanted to know but as you can see, these hallucinations are affecting my whole life.  I have a list of other symptoms for the ENT specialist when I get there.  I really hope s/he can help me as there wouldn’t be much worse than being stuck with these hallucinations for life.  That scares me as much as anything.

Please don’t give me advice (unless you are a ENT specialist).  I didn’t post this to get advice, but more to explain just what is going on for me and why you haven’t seen much of me lately.

My quote to finish is one more problem I have right now.  And it is perhaps the scariest of all.  I really struggle with it at night when I think the noise I can hear is someone breaking in.

“I no longer knew what was real and what wasn’t.  The lines between reality and delusion had become so blurred.” 

― A.B. Shepherd, The Beacon

Related Articles

What’s Fair?

I caught myself out last week, saying a sneaky little “It’s Not Fair!!!”  It’s easy when I take a somewhat child-like view of ‘everything is against me‘ and so…  ‘it’s not fair‘.  It’s so easy to slide down that way and to end up feeling completely sorry for myself.

In my family, my second oldest nephew is well known for his “it’s not fair!“.  Of course, being the second oldest, and worse still, the middle child, is first on his list of what is ‘not fair‘.  There’s sometimes bigger issues at stake for him too.  I’ve heard his father (my second oldest brother and a middle child) give Master Thirteen his reasoning for why actually it is fair.  It’s something to do with being fair or equitable.  Actually it’s lost on me, but then his speech was never for me anyway.  Sometimes though, it would be helpful to have someone who would remind me of a better way to look at things than ‘it’s not fair‘.  Sometimes it’s too easy to forget.

Last week I went to the doctor after a few weeks of what seemed concerning and slightly weird symptoms.  I’m never very good at getting myself to the doctor but googling some of my symptoms left me with the clear instruction to do exactly that.  Go to the doctor.  Now.

To cut a long story short (I know you don’t have all day), the doctor started using the words ‘likely tumour‘ and began the process referring me to an ENT specialist.  As he said, my symptoms were out of his league.  I guess at least he was honest.  Then again, that ‘T‘ word is a bit like the ‘C‘ (cancer) word.  Words we don’t want to hear. I didn’t want to hear what he had to say.

I think I was only in the car park when I began on my ‘it’s not fair‘.  Doesn’t it seem like some people go through life with not a problem?  No serious illnesses, no big crises, not even huge relationship breakdowns.  They just glide through life.

And that’s where I got in my rating of fair.  I didn’t need to go any further than mental illnesses and chronic physical illnesses.  It seems like it’s one thing after the other.  I won’t go through all my other woes.  If you’ve been reading you will have an idea of them.  If I simply look back at the last five years?  Wow!  Crisis after crisis.  Wouldn’t it be nice to have a quiet patch?  A space in which life would just flow easily?  Is that too much to ask?

I started to think about what ‘fair‘ actually means.  I didn’t get very far.  What dictionaries suggested was that “fair  was the right way to treat someone, and what they deserve“.  But what does that mean?  Who gets to decide what is right for my life compared to what is right for say, yours?  And even more so, who gets to decide what I deserve?  That starts to suggest karma, and I have to admit that I actually don’t believe in karma (I’ll probably be shot down for that one).  Karma, in terms of retribution makes no sense to me for the same reason as fair makes no sense.  Some people get such a rough deal in suffering when they’re actually very good people, where others just sail through life and are scoundrels.  I can’t accept that this is because of what they might or might not have done, or even what they deserve.

So I’m choosing not to say this latest blow at the doctor’s surgery is fair or not fair.  It just is.  It’s just the next thing that I’m going to go through.  It scares the hell out of me but I don’t deserve this any more than anyone else would.  It’s not about fair, it’s simply about what is.

In the meantime I just have to wait.  The New Zealand Health System is such that I just have to wait my turn to see the specialist.  The doctor told me I am likely to get bumped up the waiting list because of what he called the serious nature, but I still have no idea how long that will take.  Hopefully not too long as some of the symptoms are getting on my nerves, and I sure can’t claim to being a patient person.

“The world isn’t fair, Calvin.”
“I know Dad, but why isn’t it ever unfair in my favor?” 

― Bill Watterson, The Essential Calvin and Hobbes: A Calvin and Hobbes Treasury

Who’s The Bully Now?

A few weeks ago I wrote about compassion (see Where Does Compassion Fit?).  That post came from a number of issues including subjects that were being discussed by other bloggers, as well as a slowly developing personal belief about how I treat others.  Several issues came up from the comments to that post, as well as from that which I have been reading about in various places.  So I need to return, in some way, to the subject or I will never get to sleep at night…

I was about nine and sitting on the outside fire-escape stairs at school one afternoon.  The class bully (M) came and sat down next to me.  She wanted the watch I was wearing.  This watch was a gift from my grandmother, who had gifted three of her old watches to her three grand daughters.  The watch was probably about 70 years old at that stage.  It was gold and was very precious to me.  M pulled the watch (on my wrist) towards her and then suddenly let go.  Naturally my arm flew back into the brick wall I was sitting next to.  The glass on the watch smashed as it hit the bricks.  M seemed happy with what she had done but left me in tears.

That afternoon when I got home I went in search of my Dad.  I found him in the church (he was the minister and so the church was next door to our home).  Dad took me on his knee as I told him what happened.  I told him I wanted to get M back.  I don’t remember the whole conversation but I do remember what he told me about revenge.  “Two wrongs don’t make a right” he said.  I wasn’t going to fix the matter by trying to hurt the bully back.

Something that struck me in that last post on compassion, is that for many people they hold in their heads the idea that there are a some people who don’t deserve compassion. “They’re not human beings, they’re monsters“.  I struggle with that one because I believe that those ‘monsters‘ (a human being is never a monster in my mind) are simply people who have been on a different journey.  And who am I to judge someone else’s journey?

I’m not saying that if people have done harm and maybe have some criminal issue to address, that they shouldn’t be held accountable.  I’m not saying if they have hurt me, then I don’t have the right to be angry and hurt.  I’m simply saying that for me, those ‘monsters‘ are still human beings and so still deserve my compassion.  I can address the issue of the hurt they have caused me, but I do it with compassion.  Not always easy to do, but for me it’s worth trying.

I know that’s a hard one to swallow, and I can hear people saying that I just haven’t been hurt badly enough by those ‘monsters‘.  Actually I have had more than my fair share of hurt from those people, but I simply don’t see that I have a right to turn around and seek to destroy them.  To write them off as not even worth being called human.

Maybe my compassion for them takes a different form than for someone who hasn’t harmed me, but I still have a responsibility of compassion toward my fellow human being.  And actually, it’s the way I prefer to be.  It, in time, enables me to let go of the anger I felt.

I know many people might disagree with me.  That’s ok.  What I’m doing here is thinking out loud for myself.  I am in no way telling you what you should do.  I believe that is for each of us to work out personally.

The purpose for me blogging is not to ‘make it‘ to the ‘cool group‘ of bloggers.  Actually until a few weeks ago I never knew such a group existed.  So I’ve now read, apparently it does.  I don’t want to be cool.  I don’t need thousands of followers.  I am happy to have the people who read my blog, as I really appreciate them taking the time to read what I write.

I have never been ‘Freshly Pressed’, and actually I suspect I never will be.  I don’t write the right things for that, and again, it’s not one of my goals.  Perhaps if my goals as a blogger were different, then I wouldn’t write posts such as this but I need to express myself when I get really disturbed by what I see/read.

Lately I have seeing some really hurtful things being posted, attacking people, often all in the name of getting one back.  I think it’s really sad if that’s what blogs are used for.  Naming and shaming. Revenge. Getting one back.  Bullying.  Even standing by your friends.  Whatever you call it, all it is does is hurt people (often innocent parties too) and frankly puts me off wanting to be a blogger, let alone read blogs.  To be able to write and express ourselves so freely makes us fortunate as writers.  We shouldn’t abuse that.

Many of us have histories of being hurt, abused and badly treated.  For many of us expressing that hurt is what blogging is about.  But it strikes me that having experienced these things in our lives, we should have a much better sense of how much harm we inflict when we choose to attack others.  I continue to want to treat other people as I would want to be treated.

I want to be clear that I will never use my blog to attack another person.  I am quite clear that if I have an issue with a person, then I can deal with that directly, but it is not the way that I want to blog.  If I find myself having done that, then it will be the last post that I write.  I also don’t intend to follow blogs anymore where individuals are being attacked in ways that seem inappropriate and unfair.

I can’t tell others how to behave, but just think about this… do two wrongs make a right?  If so, then who has become the bully?  And what do we think of bullies?

Personally I can’t stay quiet when I see bullies in action.

“If you are neutral in situations of injustice, you have chosen the side of the oppressor. If an elephant has its foot on the tail of a mouse, and you say that you are neutral, the mouse will not appreciate your neutrality.” 

― Desmond Tutu

Where Does Compassion Fit?

I really started to learn about compassion when I made a decision to love someone deemed by others to be unworthy of that love. I started to understand the cost of compassion when I was judged on that decision.  When I was going to be loved on the basis of that decision.  Then I knew that compassion is easy when people are nice, animals are cute and cuddly, and when no one’s done anything that might harm us.

When others stand and literally spit at you and call you names, then you start to realise that sometimes compassion has a cost.  Yet I still want to be a human being who has compassion for my fellow beings.  It’s simply a harder battle.  It simply makes me be sure of what (and who) I believe in.

We talk of compassion as something that rolls off the tongue, but I’m starting to realise that those who practise it most pay a price when they choose to exercise it to those who the rest of the world deem unworthy.

“Anyone can slay a dragon …but try waking up every morning and loving the world all over again. That’s what takes a real hero.” 

― Brian Andreas

I thought I started to learn about compassion as a teen.  I don’t remember it being raised earlier, although I am sure it was implied.  When people hurt me, I was told to have compassion for them.  Usually that compassion came with the word ‘Christian‘ in front of it, although I have never understood why.  My experience is that when compassion is prefaced by religion then it sadly comes with conditions.  Some people are deemed unworthy of compassion simply because they choose to be different.  That just screams ‘wrong’ to me.  It did then, and it does even more so now.

But still, that’s what I was taught.  Put aside my own hurts and be compassionate towards the ones who had hurt me.  As a teen that was really hard, especially when I had been hurt badly.  It seemed to me that no one was being compassionate toward me.  My hurt didn’t matter and I learned from that, rightly or wrongly, that I didn’t matter.  I couldn’t understand people who loved me telling me in this way that I didn’t matter. Although they claimed that’s not what they were doing.

As I’ve grown I have distanced myself from the prefaced type of compassion.  It seemed false to me, although I hasten to add that there are some very loving and caring people in any community.  It just seemed inconsistent and uninterested in my needs or my beliefs.

Now I see compassion as something that all human beings should have for all other beings.  But as I’ve already suggested, it’s perhaps hard to be compassionate when you’ve been hurt.  That said, I don’t believe it’s impossible.

Last year I was hurt very badly by someone.  While I was still picking up the pieces, that person accused me of hypocrisy.  I was accused of writing in my blog about compassion, yet not showing it to the person who hurt me.  Did I laugh or did I cry?  I admit that accusation stopped me in my tracks, because I knew it was something I had blogged about and I needed to question my actions since.  For a while there, it was difficult to write at all.  I also knew that the person accusing me had hurt me bad yet I had done nothing to deserve it.

I eventually came to the conclusion, that I hadn’t been hypocritical.  The person who had hurt me was entitled as anyone to my compassion, but I was also entitled to theirs.  Is that confusing?  Hopefully not.  It came back to that issue of how to be compassionate when you’ve been hurt.

Actually it led to a realisation that I needed to be able to forgive their actions/words in order to have compassion.  It didn’t come immediately, because I still hurt like hell, but it has come since.  It didn’t fix the relationship (that won’t happen) but it gave me some peace, and actually, that was enough.

As human beings I think that we make judgements about who does, and doesn’t deserve compassion.  I’m not convinced that the judgement is mine to make.  Who am I to determine who deserves compassion?

The reason for this post comes from things I’ve seen, heard and read lately, on a number of different subjects.  Watching people determine that they have the right to destroy another person’s life rather than have compassion.  I’m not referring to anything specific because it’s there every day, anywhere we look.  Often that destruction occurs of people who are unknown to the destroyer.  They don’t even understand the effects of their actions.  They simply don’t know who they choose to destroy.

I’m not perfect.  I make mistakes, and maybe at times I don’t have as much compassion as I should for someone.  We’re all human.  And when we’ve been hurt, compassion seems next to impossible.  It makes me so sad how easily, we as humans, can set out to destroy others, and then we congratulate ourselves on a job well done without stopping to think of the price, without stopping to think of the alternative… compassion.

So you think I’m crazy?  No.  Just thinking about another way of being.

It’s not my right to destroy another, but I believe it is my job to offer compassion where I can.  I was told recently that if I had compassion for a person who had hurt me, then I hadn’t suffered enough at their hands.  The person who said it hardly knew me and certainly didn’t know of what I had, or hadn’t suffered.  I disagreed strongly with that view for so many reasons.  But mostly I just don’t see it as my role to destroy others.

I know all too well how hard it is to be compassionate towards a person who has hurt me.  Being hurt doesn’t give me the right to hurt back, although I know that’s what comes naturally.  I think if someone has hurt me and I find it hard to give compassion to them, I need to back off  (and probably shut my mouth) rather than seek to destroy.  Eventually I will work to a point of peace again, and maybe then I can find that compassion.

In case you’re wondering, this is all me just wondering out loud.  I’m working out something for myself.  I’m not saying that it’s how it has to be for anyone else.  Although I think for me, it has to be.

“Deserves it! I daresay he does. Many that live deserve death. And some that die deserve life. Can you give it to them? Then do not be too eager to deal out death in judgement. For even the very wise cannot see all ends.” 

― J.R.R. Tolkien, The Fellowship of the Ring

This Has Been A Hard Day

This has been a hard day for me today.  I’ve done everything I could to hide from it.  To put on a smile, make happy posts on social media, to do ‘happy’ things.  All the while what I was hiding was that I was breaking up.  The emotion of today crumples who I am, and I’m not sure exactly where I go next.

It’s really easy for me to put the ‘happy face’ on.  I do it all the time.  If I’m with anyone who knows the ‘happy face’ is not how it really is, then I’ll struggle to carry it off.  But today, it was only me that knew I was falling apart.  Only me that knew that ‘innocently’ spoken words, and words not spoken at all are so damn painful.

Yesterday I saw a post on Facebook which must have been written for me.  Well, not really.  But it was appropriate to how I feel today.  I don’t know who the real author of the image is (it’s so hard to tell these days with people stealing images all over the place).  Because of that I can’t share the image with you, as it is important to me to attribute credit accordingly.  But I can share the words that hit me:

You’re important!

I’m here!

What can I do?

You are loved!

You are worthy!

They were quoted as words to say to some who is feeling down.  But for me, they are words that I wish that a specific person in my life would say to me.  I know s/he won’t.  I won’t ever hear those words from that one figure in your life, and today that is tearing me apart.

There are other people in my life who would use these words on occasions, but sometimes it’s what you need from just one specific person.  Common sense and experience though, tells me it’s ain’t going to happen. I just have to ride this time out.  There’s another day tomorrow and maybe it won’t hurt so much.

But in the meantime it hurts like hell.

“Life will break you. Nobody can protect you from that, and living alone won’t either, for solitude will also break you with its yearning. You have to love. You have to feel. It is the reason you are here on earth. You are here to risk your heart. You are here to be swallowed up. And when it happens that you are broken, or betrayed, or left, or hurt, or death brushes near, let yourself sit by an apple tree and listen to the apples falling all around you in heaps, wasting their sweetness. Tell yourself you tasted as many as you could.” 

— Louise Erdrich (The Painted Drum LP)

It’s Been A While…

It’s been a while since I lasted posted.  Much longer than I had intended, but as you know, that’s the way the cookie crumbles sometimes.  There has been a hard time of depression, which unfortunately still continues.  It’s difficult then to motivate myself into anything, and time has just passed without me being really aware of it.  It seems that when depression isn’t winning the war, then fibromyalgia is.  I seem to swing from one to the other, without as much as a break.

There have been two dilemmas pressing down on my desire to blog right at the moment.  The first is a simple case of needing to protect the privacy of those around me.  Mostly it is simple to disguise identity, but sometimes it is not so easy, especially when I write under my own name and people in my ‘real‘ life read my blog.  The result is that some issues just don’t get written about.  The people around me do not get a choice in whether I blog, so I must appreciate that, and leave them out of the equation as much as possible.  Sometimes it means no posts, and I avoid those topics completely.  It’s far easier than causing offence unnecessarily.  But often anonymity has its attractions.

The second dilemma has been a more difficult and painful one.  From the experience of being lied to, abused and manipulated, I find myself reluctant to ‘put myself out there‘.  While in the past I was willing to write pretty freely of my experiences and feelings, once I got slapped in the face (hard!) I am not quite so willing to be open.  Because the pain came initially through my blog, I think it’s natural that I need time to reassess.

What is it that I am willing to ‘put out there’?  What is it that I am able to share openly, while protecting my own need for safety?  How can I achieve my goal of wanting to write about mental illness recovery, without putting myself at risk of abuse?  These are the questions that I need to answer for myself, and if you have thoughts I’d love to hear them.  They’re difficult questions, especially once someone has broken the trust, and I might take a while yet to work out exactly what I want now.

Ultimately there is always risk when writing openly.  I know that, it’s just that I need to decide for myself how much risk I take.

So meantime…

Do I start posting recipes?

I don’t think so somehow.  While that might have been me 20 years ago (in my days as a foodie… I could afford to be one then), it’s not me now and I think I would die of shock if I found myself posting recipes.  All power to those who do, it’s just not me.

So…

How about I post pictures of my pets?  That usually goes down well, and personally I love seeing photos of pets.  So try this…

Meet my dog, Dixon.

Dixon

Dixon is 34 years old, and has yet to need to be taken for a walk, yet to need to be taken outside to ‘do his business‘.  He hasn’t even needed a trip to the vet.  Oh, except I think an eyebrow needing re-gluing but actually the vet wasn’t required for such a procedure.

While he gives excellent cuddles with a bit of encouragement, he will never wake me up with sloppy, wet kisses to my face.  While there are a few drawbacks to this kind of dog, you have to admit that 34 years for a dog is ‘going the distance‘.

My best friend at high school gave me Dixon, and he is named after her.  She had a similar dog (different colouring).  My friend died tragically in a car accident about 15 years ago, so still having Dixon now is very special to me.

Actually I’d love to have what you might call a ‘real dog’ but Council By-Laws in my city rule that out as an option right now, as it is a requirement to have your property completely fenced if you have a (real) dog.  That’s not something I can do, because of shared property ownership, but no one can object to Dixon.  My neighbours don’t even know he’s here. ;-)

Stay tuned for more pictures of pets, meanwhile I’ll get back to trying to work out just what is right for me in terms of blogging.

One final point.  I love you, my blogging friends.  Please don’t think I don’t.  It’s simply when one person spoils something, it takes work to find the will to trust again.  But I will find it, eventually.  And if you haven’t seen me on Facebook lately, I’ve been taking a break from there too.

“Laugh, even when you feel too sick or too worn out or tired. 
Smile, even when you’re trying not to cry and the tears are blurring your vision. 
Sing, even when people stare at you and tell you your voice is crappy. 
Trust, even when your heart begs you not to. 
Twirl, even when your mind makes no sense of what you see. 
Frolic, even when you are made fun of.
Kiss, even when others are watching.
Sleep, even when you’re afraid of what the dreams might bring. 

Run, even when it feels like you can’t run any more.
And, always, remember, even when the memories pinch your heart. Because the pain of all your experience is what makes you the person you are now. And without your experience—you are an empty page, a blank notebook, a missing lyric. What makes you brave is your willingness to live through your terrible life and hold your head up high the next day. So don’t live life in fear. Because you are stronger now, after all the crap has happened, than you ever were back before it started.” 

― Alysha Speer

Scared Of The Dark

Today in New Zealand, is Guy Fawkes Night.  It’s a tradition that is celebrated in a number of countries and has its origins back in 1605 when a man by the name of Guy Fawkes, attempted to blow up the British Parliament.  Apart from the fact that New Zealand is part of the British Commonwealth, I really don’t see why we still ‘celebrate’ it.  Afterall it’s nothing to do with my country is hardly an honourable event.

Celebrations come complete with bonfires and fireworks, and what kiwi child can’t remember their father tying Catherine Wheels to the clothesline, and setting off Skyrockets out of the old glass Fanta bottles?  The fireworks were always pretty but the fear of the noise and fire was overwhelming for me, and I was usually glad it was over.  The bullies after school would set off Double Happy and Tom Thumb firecrackers, throwing them at anyone in the wrong place at the wrong time.  Again, not something I enjoyed.  Thankfully firecrackers are no longer legal.

Nowadays there is a move to official, public firework displays down at our local New Brighton Beach.  I’m quite okay with those, although I don’t ‘do’ crowds so tend to stay away.  Crowds in the dark, with loud explosions, is not my idea of fun, even if it’s professionals out on the sea lighting the fuse.  But still many people choose to let off their own fireworks in their backyards, and last night it seemed that my whole suburb was doing this (perhaps leaving them free to go to the official display tonight).

Yesterday wasn’t one of my better days.  Actually on the fibromyalgia front, it was a pretty good day (finally) but there were a few emotional triggers, a few ghosts from the past,  that set off several (private thankfully) meltdowns of tears.  It was one of those days I didn’t want to be awake anymore so headed to bed early.  Unfortunately at the same time my suburb was letting off fireworks.

See?   I can admit it.  I’m scared of the dark.  Actually I wasn’t as a child, but as life has gone on and trauma has come my way I have come to dread the dark.  I simply don’t like not being able to see what is around me.  I need to be able to see if there are any threats to my safety or sanity.  Some nights are better than others but last night was one of those where I was sleeping with the light on.  What’s more I couldn’t bring myself to close my eyes.  I desperately needed to see.  That doesn’t help in the getting to sleep process.

As I lay there, trying to go to sleep, fireworks were exploding nearby sending both light (through the curtains) and noise into the room.  I was anything but relaxed.  I knew it was probably a window of about half an hour (as it went dark outside) that the fireworks would continue.  I grit my teeth (don’t tell my dentist) and sat it out.

“Someone once told me that none of us are actually afraid of the dark; we’re scared of what it conceals from us. We’re afraid of having something with the potential to hurt us standing right before our eyes and no registering it as a threat. People can be like that too.”

- Unknown

For me, these words are quite accurate.  I wasn’t scared of the dark as a child and generally wasn’t an anxious child.  I’m 48 years old now and I struggle to sleep in  the dark.  Even my darling L (who, by the way,  turns three next week) sleeps in the dark, with an occasional visit from mum.  But not me.  I go through stages of needing a light on somewhere, but right now it’s not a good stage.

I have learned what the dark contains, and what is hidden in the shadows.  I have learnt that there are people and things that can hurt me.  I have only just got over the whole ‘earthquakes in the dark‘ thing that has been hitting my city for three years now.  Imagine a 7.1 quake in the dark if you can, and you soon learn of what you are scared.

More recently though I have discovered there were people standing right beside me, that were a threat to me… but I had no idea for far too long.  They were there to abuse me, and lie to me, determined to ‘play’ with me and perhaps even destroy me… and I had no idea.  Let me be clear.  I knew they were there, but I had no idea they were such a terrible threat to me.

That’s why I’m scared of the dark.  I need to know what, and who is there.  I can’t close my eyes because I might miss their approach.  Now that I know of their existence and threat, I can do (and have done) what I can to protect myself.  But trauma has visited me again, and I remain fearful of anything else that might seek to harm me.

I have some work to do, but meanwhile the light stays on.

“There are wounds that never show on the body that are deeper and more hurtful than anything that bleeds.” 

— Laurell K. Hamilton (Mistral’s Kiss (Merry Gentry, #5))

Dona Nobis Pacem (2013)

(That’s what ‘Dona Nobis Pacem’ means)

Today I am participating, for the second time, in Blog4Peace…   because peace is something that I strongly believe is desperately needed in our world.  Bloggers from over 200 countries are participating today, and that just says to me how important our quest for peace is.

Sometimes I’m not too good at sticking to ‘the rules’, especially with blogging challenges and the like.  Hopefully Mimi will forgive my errant ways.  Usually bloggers create a template of their statement of peace, and post it on their site on 4 November.  I have borrowed a template (above) for this post, but came to the conclusion that firstly, I’m a better writer than an artist, and secondly, I had something to say that I couldn’t contain in a template. As well as that my brain isn’t quite functioning straight right now and to achieve both tasks is simply beyond me.

The Mission (1986 film)

The Mission (1986 film) (Photo credit: Wikipedia)

I was watching a movie the other day.  A favourite from years ago, of which I have just managed to get my hands on a copy.  It is The Mission (1986) starring Jeremy Irons and Robert de Niro.

The brief summary of what this is about is that some Jesuit priests are living and working with locals above the Iguazu Falls in the South American jungle in the 1750s.  There is some outstanding music in this movie, probably one of the reasons I love it, but there are difficult moments too when Portuguese rulers take back the land, destroy the mission built with the Jesuits ,and try to enslave the locals.  The priest, played by Jeremy Irons, believes that God is love, and violence is a direct crime against that love.  He argues that they should trust God rather than fight back.  He chooses to stay with the villagers in peace while other Jesuits decide to renounce their vows and fight with many of the male villagers.

It’s hard to fit a movie into a paragraph, but the reason I raise it is the two choices that are made, effectively between peace and war.  I sat watching the movie, and there were villagers, priests and soldiers representing the Portuguese rulers dying everywhere.  Most of it was played out beside the river and I was struck how easily dead bodies were cast aside, out-of-the-way, so that the fight could continue.  It seemed to me those bodies meant nothing, and I was struck with a knowing that I could never kill another being (human or animal), in such a situation because I simply couldn’t allow myself to let them mean so little.  It was difficult enough to stand and watch my cat being euthanised last year.  I knew it was taking away her pain, but it was so difficult to let a life be taken.

That said, that’s an easy statement for me to make.  I’m not back there in the 1750s with the threat of my village being destroyed, and I’m not even in a position where I have to consider that I might be sent to war here in the 21st century.  I live in a country (New Zealand) where military involvement is not mandatory. It was for young men (including my grandfather) in the first and second world wars, but as a woman, that was never something I would have had to face doing.  Yes, it’s easy for me to say.  My choice not to bear arms would not have any affect on my family and/or loved ones.  Saying no is definitely an option for me.  But I get that for so many, it’s not that easy.

Peace is one of those things that I think we all have our own views of what it is about.  For me it is about respecting the value of each human being to a point where that person deserves to be saved.  This post isn’t directly about war, although obviously it is not ignored because without peace we often have war. My personal belief is that war is never necessary.  There is always another way of solving a dispute, and every effort should be taken to preserve life.  Maybe it’s more difficult, maybe it takes longer.  Jeremy Irons, in his role, chose to take what he viewed as God’s way.  That’s not why I like it but rather what I do I like is the respect a peaceful solution offers to each individual.

We are all worth saving.  None of us deserve to be left dead or injured on the side of the road, or permanently traumatised by the horror that soldiers, and the indigenous and local people have witnessed in the name of war.  My belief is that peace values each of us.  It says we are all too important to be cast aside as I saw in the movie.

That’s why I have taken time out from my usual blogging to take part in today’s Blog4Peace.  All of the bloggers taking part in this event believe that if words are powerful….this matters. The wider we spread this message, each in our own way, the more people will see that the right thing to do is to lay down arms and live at peace.

What does all this have to do with blogging for mental health?  If we had peace world over then we could all let it be.  I am convinced that our overall mental health would be significantly better.

Music drew me to that movie, just as I believe that music draws us in peace toward togetherness.  That’s why I’m finishing this post with music from Playing For Change Songs Around The World.

“Dad, how do soldiers killing each other solve the world’s problems?” 

― Bill Watterson, Calvin and Hobbes: Sunday Pages 1985-1995

Image credit:  Shannon Pinkley-Wamsley

Lost For Words

It’s been a while… well, it has been a while for me since I wrote.  In my last post, I commented that I thought I had turned a corner, and I firmly believe that in that I have gained a whole lot of peace that has been missing from my life for months.  It doesn’t mean all the hurts are healed by any means, but it does mean that I can start to move forward.

That said, I stopped writing because I have simply been lost for words.  I still am, but I’m trying to pull a few words together because for some people I owe them an explanation for my silence and absence.  I know that I’m not doing a good job as a friend right now, because I guess I have cut myself off and withdrawn into my own world.  There are a number of reasons for that, some of which I have a better understanding of than others.

Firstly, fibromyalgia.  One of the symptoms of my fibro is my inability to recall the words I want to use in conversation.  It applies to writing too but it simply takes longer, but for a conversation I am constantly struggling to come up with the words I want.  There is a technical name for that, but I admit I can’t for the life of me remember.  Ironic, isn’t it?  But it’s just a label.  It’s also something that is common for fibro sufferers although everyone’s symptoms are different, and so not everyone will struggle with it.

It is good when I have someone with me who knows me well.  They can help me find the words I want, but usually I just look, and sound like I’m old before my time and my memory has gone, or just completely dumb.  My memory hasn’t gone, and I’m not dumb.  It’s simply about the brain processing information.

I admit that I get frustrated with it when it is particularly bad, and so I withdraw.  Any form of communication becomes frustrating.  It’s easier just to not go there.

But there’s another reason for my withdrawal, one which I don’t fully understand but that I’ve seen myself go through before.  This past year has seen a lot of hurt for me.  I haven’t been treated as well as I would like at times, and because of it, I have struggled to trust.  The more I got hurt, the more I withdrew because I simply didn’t want to be hurt again.

It gets out of control when I don’t know who to trust, even my close friends.  When the scared part of me shuts them out, as I have done, I know that I’m in problems.  It’s just that acknowledging the problem is one thing, but changing the behaviour is another.  It’s not that I don’t trust my friends, but it’s more that I don’t trust the world as a whole, and my friends get caught in the way.  I’m sorry.

I have written in the past about Ted (see Real), and in this situation he becomes all that I trust.  He becomes my world because I know he won’t hurt me.  I said to myself a few months back that I wasn’t ever going to write about Ted again because the risk I took in my honesty about a very vulnerable part of my life was abused.  But if you don’t get anything to do with Ted, then you won’t get me.  Ted is, in part imaginary, as well as in part real.  It’s confusing, I know.  Over a long period of time he has been my way of coping with the world.  When the world gets too much, I withdraw back to him.

Withdrawn is not a place I want to stay but if you haven’t heard from me, if I haven’t replied to messages, if I haven’t commented on your posts… this is why.  I’m trying to learn to be a part of the world, a human, a trusting human again.  I have got some peace, but now I need trust.  Please bear with me in the meantime.

“If ever there is tomorrow when we’re not together… there is something you must always remember. You are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we’re apart… I’ll always be with you.” 

― A.A. Milne

  • Real (infinitesadnessorhope.wordpress.com)

You Should Have Protected Me

Since I started to write about my life experiences and journey with mental illness, I have had a variety of responses to my experiences from friends and family.  That’s not surprising.  Often I reminded them of things that had happened in the past, people who had been in our lives, and often too, they have also gained a different perspective to our shared histories.

“I wish there was something I/we could have done”

“I wonder if I/we could have helped”

“Perhaps I/we could have protected you”

Sometimes their responses were affirming for me, but other times I admit I wished I hadn’t written it in the first place, because now it seemed that some were holding guilt for something past (whether or not it might be warranted).  It’s hard, because it wasn’t something I was seeking.  For most of the bad things that happened along the way, I wasn’t consciously blaming others, although I know that, mostly, unconsciously there was a conversation going on in my head of “if only“.

“If only it could have been different”

“If only someone had been there”

“If only someone had protected me”

But ‘if only‘ didn’t happen.  Or perhaps if ‘if only‘ had happened then I wouldn’t have been writing about it.

For that conversation in my head, I have had to travel a journey of forgiveness and letting go.  Sometimes it has been easier than others, and I admit I am far from completely through that journey.  Sometimes I think I’ve got there, but then it hits back and I know I have more work to do.

Perhaps the bigger battle though, has been the statement that I see now that I have spent most of my life telling myself…

“You should have protected me”

I should have protected me.  Right or wrong, that’s what I’ve been saying.  I should have made sure the harm I came to, or the experiences I went through, didn’t hurt me.  I should have protected me.

What strikes me is that even as a child I expected myself to be the one doing the protecting.  That seems like an awfully big ask for a child.

I realise I continue in my life today saying I should have protected me.  If I look at the events in my life of the past year or so, I have struggled more so with somehow letting myself down, than with what anyone else might have done to me.

As I have written recently, I felt let down by my gut instinct (see Gut Instinct).  My gut instinct appeared to have not warned me of danger.  I felt so sure of what I was doing, certain I was on the right path… only to crash and find I was ‘wrong’.

I put that in inverted commas because I felt wrong.  I was certain I had got it wrong, but I’m starting to accept that while my gut instinct didn’t lead where I thought it was going, it wasn’t necessarily wrong.  And that is a huge thing for me to be able to start to say (actually a friend said something similar to me a while ago and I couldn’t possibly see what she meant).

Right now I have little idea how it can be can be ‘not wrong’, but I’m willing to let it be a possibility.

While I have had another outstandingly, horrible week, I’m learning in the process of pain.  I’m learning to forgive myself.  To remember that I am human too.  I am allowed to make mistakes, and I don’t have to punish myself for a lifetime ever after.  I admit I know very little about self-forgiveness because I’ve never given myself that chance.  I’ve been so hard on myself that self-forgiveness was never an option for me.

Today, I realise that I can forgive myself.  I can allow myself to be human.  Just as I allow others to be human, it counts for me too.  I think I’ve turned a corner.

“Therefore, you really need your inner protector to stick up for you: to put your weaknesses and misdeeds in perspective, to highlight your many good qualities surrounding your lapses, to encourage you to keep getting back on the high road even if you’ve gone down the low one, and – frankly – to tell that inner critic to Shut Up.”

 - Rick Hanson, Wildmind