Why I Disclosed My Mental Illness To My Employer

Cate Reddell:

My latest post for A Canvas Of The Minds…

Originally posted on A Canvas Of The Minds:

Cate

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It’s a difficult one.  To disclose or not to disclose?  There are plenty of articles around about the issue of whether to tell your employer that you have a mental illness.  I came across a recent one and it got me thinking.  I disclosed in the past but would I do it again?

The article, Deciding Whether to Disclose Mental Disorders to the Boss by T.J. Kirkpatrick (for The New York Times) got me thinking.  Has my mind changed?

You see, in 2009 I chose to tell my prospective employer that I had a mental illness.  I know my approach on this subject is different than most.  I respect that, and I respect your right to have a different opinion than me.  But I want to share why I did what I did.  Maybe it wasn’t the wisest decision I ever made.  That’s debatable.

At…

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Why Can’t I Have Both?

It’s been a while… I know.

It’s just on two months since I disappeared off the blogging trail.  No explanation, just not there.  My apologies for the ‘no explanation’, but it just had to be.  The short story is that I came to a point where it was necessary for me to question whether my participation in the blogosphere was helping or hurting me.  Was I getting out of blogging what was good for me, or was it actually causing pain?  Ideally it would be great to say my participation couldn’t possibly be hurting me, but that’s simply not true.  I have yet to resolve the issue in my mind, and so in the meantime I will only be posting sporadically, when something is weighing particularly heavy on my mind.

I admit too, that pulling back in my participation has also included cutting back on how much I have been reading others’ posts.  That has simply been too hard, particularly with writing comments.  But I do still have a desire to support the blogs I follow and I will be back eventually.

Meanwhile, a dilemma falls before me.  It’s not one that is new to me, but perhaps this time it is a bigger issue because of the consequences involved.  Two options are before me and I wish so much that I could have both.  Unfortunately it doesn’t always work that way and particularly in the issue of mental health versus physical health.  So often it seems the option is one or the other.  Why can’t I have both?

This past week I finally got in to see a Pain Specialist to consider how best to treat my Fibromyalgia.  I’ve been waiting for this for several years now, so it was so great to finally be there.  Regular readers will be pleased to know that I also finally changed my doctor (General Practitioner) a few weeks back.  That, and seeing the Pain Specialist has finally given me some hope that treatment is possible.  Unfortunately though, it looks like it might come with a cost.

The Pain Specialist has recommended a medication for me to try, which if it works for me, could turn my life around in terms of the pain and fatigue that I have on a daily basis. What the medication recommended isn’t important to this post as the last thing I want to do is get into a conversation of ‘what works for who‘.  I don’t see the point in that simply because we all respond to medication differently.

It was not possible for me to start on the medication straight away as it was necessary to get funding approved from the New Zealand health system.  The hope was that by the end of next week I would be able to start.  It would take some weeks to get to optimum dose and so to work out if it was effective.

It was all sounding great, until I came home and did my own research on the drug.  I am particularly careful to read up on medication I intend to start on because of firstly adverse interactions with other medication but also because of those lovely side effects we all dread.

The interactions were listed as moderate, but I had discussed it with the specialist and we agreed that with careful monitoring it would be ok.  But the side effects were different.  All the usuals, including my dreaded weight gain… but here’s the one that stopped me in my tracks:

“you should know that your mental health may change in unexpected ways and you may become suicidal (thinking about harming or killing yourself or
planning or trying to do so)”

Added to that was:

“….panic attacks; agitation or restlessness; new or worsening irritability, anxiety, or depression; acting on dangerous impulses; difficulty falling or staying asleep; aggressive, angry, or violent behavior; mania (frenzied, abnormally excited mood); talking or thinking about wanting to hurt yourself or end your life; withdrawing from friends and family; preoccupation with death and dying; giving away prized possessions; or any other unusual changes in behavior or mood”

It speaks for itself.

I know that this is not the first, or only, medication that has these possible side effects.  There is the well-known anti-smoking medication which I have always said I would never risk taking because of the possibility of suicidal thoughts.  Then there are of course, many anti-depressants and other medications for mental illnesses which have similar risk.

I know that.   I don’t like it.  I think it is crazy, but I know that’s the pharmaceutical world we live in.  What bothers me is that I am stuck between a rock and a hard place.  Yes, these are possible side effects and might not happen but I have to be prepared for their possibility.

For just a few hours, from leaving the Pain Specialist to getting home and doing my own research, I had some hope for the possible end of my pain (or at least significant reduction).  I started to think about being able to get back to work, and was even mentally rewriting my out-of-date CV.

This drug offered me hope… but at the expense of my mental health.

Do I restore my physical health while risking my mental stability?  Or do I say no to the drug, continue to be limited in my physical health, but be sure my mental health is maintained (at whatever level it is currently at).

This is a really hard one.  Yesterday I was by chance reading Lulu’s post on her blog Sunny with a Chance of Armageddon on a similar issue she was facing. Which do we preserve?  Mental health or Physical Health?  It seems that this is a common dilemma we face when we have mental illness, and I’m coming to the conclusion that we each have to make our own decision.  For each, it will be different.

Personally, while I haven’t reached a decision on my dilemma, my inclination right now is to preserve my mental health (which would practically mean avoiding this particular medication).  While my mental health is relatively stable now days, I continue to struggle.  I have been at the bottom of the pit in terms of mental illness. Years of hospitalisation, heavy medication, ECT and the many harmful things I did to myself including suicide attempts.  I had suicidal thinking for a very long time.  I have no desire to go back there.  I suspect I would find it difficult to crawl out of the pit again.

Do I try for stable physical health?  Or stable mental health?  I hate the way my life is dominated with pain right now, but perhaps surprisingly, I think I would rather have that physical pain than to go back through the mental pain I lived with, the worst of which was through the late 1990′s.

On Tuesday I will see my (new) doctor and talk to him.  Maybe I’ll find the cash and go see my rather expensive psychiatrist too.  The problem for me is that while my medical notes are full of mental illness, none of the doctors involved knew me at the worst of my mental struggles.  They haven’t seen that Cate.  They don’t know how bad it can get for me.  I do.

There are no guarantees in this game.  I could have no side effects and get good pain results too.  It just might not happen… but I’m not a lottery player and even so, I just don’t like my odds.

But forget about my dilemma for a moment…   what would you do?  Maybe you’ve already faced this issue.  How did you deal with it?

“No amount of love can cure madness or unblacken one’s dark moods. Love can help, it can make the pain more tolerable, but, always, one is beholden to medication that may or may not always work and may or may not be bearable”

— Kay Redfield Jamison (An Unquiet Mind: A Memoir of Moods and Madness)

Lessons I Must Have Missed

Do you ever get the feeling that perhaps you missed some of life’s essential lessons?  Somehow you just weren’t there for that lesson, or maybe you had something distracting you, so you just weren’t paying attention?  I’m not talking about school lessons but rather lessons in the things we needed to know to be able to function adequately as a human being.  Lessons in things that would substantially help us get through life.

I’m coming to the conclusion that I very definitely missed some lessons which could have made life a whole heap easier and maybe even less traumatic for both myself and those close to me.  The missing lessons for me centre around emotions.  I seriously don’t think I ever learnt anything useful until I was very sick and depending on a very good therapist to get me through.  It’s more than a little sad really, and it goes along way to perhaps explaining where my relationship with Borderline Personality Disorder (BPD) came from.

BPD is a hard disorder to get your head around simply because there are so many variations. We are certainly not all the same, as many websites suggest.   There are usually many things going wrong to warrant a diagnosis, but in my mind it all centres around emotions and the ability to express and manage those emotions.

So here are a few of the lessons that I may have missed, and which may have contributed to the existence of BPD in my life.  They may seem a little disjointed, but bear with me.  There is very definitely a pattern.

Lesson Missed #1
It’s okay to feel hurt

Remember that awful little rhyme that has wrecked havoc on the minds of so many girls with curly hair?

There was a little girl
Who had a little curl
Right in the middle of her forehead
When she was good, she was very, very good.
But when she was bad she was horrid.

Who quotes that at their daughters?  Who tells their little daughter that they are horrid?  It’s horrid that anyone should even write such a rhyme let alone quote it at small girls.  And yes, it was quoted at me.  Apparently it was written for me.  My guess is that I was around four or five.

It’s difficult to remember an emotion back that long ago but my guess is that there was no expressed emotion.  I just knew that I was bad. It was a fact, indisputable by the presence of that word ‘horrid’ being applied to me by people I loved and trusted.  Did they think it was funny?  There is nothing funny in name-calling.

If I was that five-year old again, I hope that I would feel hurt, even betrayed.  It seems only appropriate, but then appropriate emotions were something I didn’t know about for a long way to come.

Lesson Missed #2
It’s okay to feel angry

By the time I got to around 15 I was struggling for a number of reasons. Not that anyone outside my immediate family would have known.  To the outside world I was a good teen who seemed to be doing all the right things.  I turned up at school (and anywhere else I was supposed to be), I passed my grades, I had friends, there was nothing I was doing wrong.  But my family knew differently.

I was a bomb waiting to explode but I had little idea of what was going on.  I guess now that I was mostly angry and frustrated but I had no idea how to express that.  I didn’t even recognise what that meant.  I would simply explode and physically lash out.  That was the only means I knew of getting what was inside out.  It would literally be an exploding bomb with no words.  No words because I didn’t have a clue how to attach words to what I was feeling.

Eventually I didn’t trust myself.  I didn’t understand what was happening, so why would I?  Being unable to temper that lashing out I made some big decisions at that point which have significantly impacted the rest of my life.  I was simply doing the only thing I knew how.  I was holding myself in.  Protecting myself, and more importantly, others.  Too scared to express anything.   Only my family know who bore the brunt of that, aside from me.

Lesson Missed #3
Feelings are NOT thoughts

Fast forward to 30.  I’m in residential treatment for a variety of mental illnesses (although not BPD).  Sitting in my therapist’s office, he has asked me how I felt about something that had happened in my life.  I tell him what I think about it.  He asks me again, and this time points out to me that how I feel about something is quite different to what I am thinking about it.

Bingo!  It might seem obvious to you, but at 30 I had no idea.  I was so shut off to my feelings that I didn’t even know they existed.  I literally thought ‘feelings‘ was another word for ‘thoughts‘.  I am an intelligent person.  But I simply hadn’t had that lesson.

That was a very big day of learning.  Life didn’t get easier because now that I was feeling, I felt every one of those emotions eventually.  It hurt like hell, but at least I was on the right road.  There was some hope.

There were more lessons to come.  I was completely closed off to experiencing what I felt.  It seems I had been right from childhood.  Why?

There are lots of possible answers to that ‘why?‘  I’m not going to get into blaming anyone, including myself.  Right now that just wouldn’t be of any help to me or anyone else.  It just was.  What I can do with having worked through this is to understand better where the BPD diagnosis eventually came from, and continue to work from there toward recovery of some sort.  I think too, that some of the other attributes of BPD which I also have perhaps came about as a means to coping.  If I went into that now, this post would become book length.  But maybe it’s time to explore those in future posts.

“Your perspective on life comes from the cage
you were held captive in.”

— Shannon L. Alder

 

Psychiatric Medication Saved My Life

Image credit: CDC via Wikimedia Commons

Image credit: CDC via Wikimedia Commons

I get a little concerned when I become aware of the news of a tragic death being used as a means to increase publicity to a particular movement or way of thinking.  I recognise that many people don’t have a problem with this, and therefore it is important that I state this is my opinion only.  What I say in this post is not fact, and I respect the right of others to have differing opinions.  I know that some of those opinions are based on tragic circumstances and I have no wish to minimise the effect of those circumstances on the people who have and still live them.

If my viewing over the past few days is anything to go by, and I accept that the internet is a large space, it seems to be a growing movement of people against the use of psychiatric medication (and other treatments) to treat mental illness.  I know this is not new.  I’m not saying it’s wrong.  It’s just that there is another side of the story and for some people psychiatric medication is the only life-saving treatment appropriate.

Since Robin Williams’ wife came out and publicly said that he had been diagnosed with Parkinson’s Disease before his death, there seems to have been a swell in people saying that his death was a result of the medications he was taking for this illness.  The reality is that at this stage no one knows the exact cause of his death.  I don’t believe it is fair on anyone, including above all Robin Williams’ memory, to be making assumptions and statements like this.

I don’t mean to take on the whole Anti-Psychiatry movement with this post, but rather because I have seen so many statements about the dangers of psychiatric medication in the past few days, I simply want to be clear that I have another opinion.

Psychiatric medication saved my life.  I have no doubt of that.  In the nearly 21 years of my mental illness I have been on a vast range of drugs, mostly prescribed by psychiatrists.  I am very aware that most of those drugs were of little or no use to me.  Also many were changed too quickly and therefore didn’t allow time for it to work.  I know they were desperate to find a quick solution.

I experienced a whole heap of side effects, which I could have done without.  One of the side effects I ‘possibly‘ experienced was suicidal ideation.  I say ‘possibly‘ because I have no means of telling whether the severe suicidal thoughts I experienced for around 10 years, from before the medication was started, were caused by the medication I was on, symptoms of my specific illness, or the life situation I was in.

It makes no sense to me (as a lay person) to have psychiatric medication that can cause side affects of suicidal thinking.  What are pharmaceutical companies  thinking?  On that I totally agree with anti-psychiatry, but I also don’t believe anyone could point the finger at any aspect of my life and say that was specifically causing the suicidal behaviour.  They would only be guessing.

Around 12 years ago my psychiatrist at the time made what would be one last change to my medication regime.  I’m purposely not going into details of the actual medications prescribed because I don’t believe that is helpful.  We know that responses to medication are different for everyone.  What has worked for me won’t necessarily work for anyone else.

Since that change I haven’t had any more hospital admissions (and I was stacking up admissions before then) and my suicidal behaviour has largely gone.  Yes, I admit there are still thoughts at times, but I can manage them without hospital admissions or crisis intervention.  I have been able to stop self harming.  I have begun to find hope in living.  These are huge changes for me and they literally saved my life.  I continue to take that medication today and will probably stay on it for my lifetime.  That’s okay with me,and yes, even in spite of what it may be doing to my body.

All that said, I don’t believe that all people who suffer from mental illness need to be on medication.  I read a blog post recently that advised sufferers of Depression to eliminate sugar and alcohol from their diet, get out walking and learn to meditate.  That’s pretty standard and I am sure that for some people, that would go a significant way in curing the problem.  But I know that this instruction wasn’t sufficient for me.  I needed more.  I believe that I needed to change the chemicals going on in my brain, and that prescribed medication was the only way to do that.

With Depression I believe that there are different levels of severity(sometimes it would be good if there were different names for those different levels).   Therefore I accept that medication is not always necessary.  If depression can be cured without medication, I think that is great.  But nothing can sway me from believing that for some people medication is the only answer.  I am sure that I would have been dead today had a psychiatrist not taken the time to find the right medication for me, and had I not committed myself to taking it daily.

I also believe that psychotherapy went a long way to contributing to my improvement, but that it is the right medication that really sealed the deal from changing what I will call a suicidal pit to some chance of living.  The medication made the therapy possible.  Without it I wasn’t well enough to undergo that process.  Of course, you probably didn’t know me 12 years ago, but those who do will attest to the fact that my life has significantly changed.

I am not cured and I expect that with the type of mental illness I have, I will continue to have symptoms, but I know that continuing to take the prescribed medication will go a long way to keeping my illness managed and hopefully keep suicide from being an option.

I totally respect people’s right to determine what is right for them.  This was right for me but I understand that it won’t be right for everyone.  But I also believe it is wrong to write off a particular type of treatment which may not be right for one but can be a lifesaver for another.  From all the range of treatments and options available hopefully there is hope.

“Others imply that they know what it is like to be depressed because they have gone through a divorce, lost a job, or broken up with someone. But these experiences carry with them feelings. Depression, instead, is flat, hollow, and unendurable. It is also tiresome. People cannot abide being around you when you are depressed. They might think that they ought to, and they might even try, but you know and they know that you are tedious beyond belief: you are irritable and paranoid and humorless and lifeless and critical and demanding and no reassurance is ever enough.

You’re frightened, and you’re frightening, and you’re “not at all like yourself but will be soon,” but you know you won’t.”

— Kay Redfield Jamison (An Unquiet Mind: A Memoir of Moods and Madness)

Facing The Mundane Realities Of Chronic Illness

There are some things which are obvious about chronic illness, although admittedly when it is an invisible illness even those obvious things are hard to see and be aware of.  I don’t mean for this post to be a ‘moaning Maggie‘ post, so forgive me if you think I am heading there.  But this is on my mind.  With most posts I publish it is my desire that people read them (ok, I’m stating the obvious), but this time I admit that the shame involved in posting leaves me with mixed feelings.  Yes, I want you to read but yes, I am ashamed of what I say.

I read awhile ago that Fibromyalgia doesn’t kill you but you just keep getting sicker.  I don’t know if that is true, or another internet rumour, but this past year certainly seems to have been worse than before.  I feel a bit like fibro has become just one long line of flare symptoms, with little or no break.  My head seems in a permanent fog.

On Tuesday I have a small army of people coming through my house to do yet another assessment of earthquake damage left from 2010/11.  Yes, you’re quite right.  That was a long time ago but recovery takes… forever it seems.

They always promise ‘minimal disruption‘ but around ten people going over (and under and through) the house with a fine tooth comb is not ‘minimal disruption‘.  That’s ok though as I am just happy that someone is doing something.  Maybe one day there will be a decision on just what to do with my poor home.

From many of these assessments before, I am fully aware that they will see everything… including the fact that my house is not just untidy, but also unclean.  And yes, it’s got to that stage where it’s plainly obvious.  I am ashamed at the state of the place, but it has become like that simply because my fibro has been bad enough to prevent me from doing housework.  I also know , like a promised added extra, that when I actually get to cleaning it is likely to land me in bed for a week, simply from the effort involved.

So why am I telling you about my shameful dirty house?  Because if you looked at me you wouldn’t see a reason why I couldn’t have kept on top of it.  I look healthy.  I look able.  I look like there is nothing wrong with me.  Yet I can’t keep up with what is simply a small two bedroom house with only one person to mess it up.

I don’t have a lot of people come to my house usually.  I admit to being somewhat of a hermit.  I have no idea of what judgements those who have been here lately will have made of me.  There is always silence.  And uncomfortable silence where you wish to god that they would just say something.

Right now I am very aware of the judgements that this army of people might make on Tuesday.  Yet there is very little I can do about it.  I can hardly stop them at the door and say “BTW excuse the mess, I have fibro“.  I really don’t think they will care for excuses.  You see, I look fine and so the judgement will be made that I am fine, but lazy.

That old adage “don’t judge a book by its cover” applies in so many ways.  If you walk into someone’s house and notice it is unclean and untidy, stop to think that there may be a reason.  Most of us don’t choose to live in such a state, but some of us find ourselves having to.

You see, apart from when ten people are about to come through my house, I can kind of overlook the state of my home.  I don’t like it, and I would love for it not to be the reality, but my priorities are largely my health and my mother’s welfare.  After those, if I have no wellness and energy to deal with housework, it simply has to be as it is.  I’m learning to live with it, even though I will probably never like it.

It’s not just chronic physical illness that can prevent us from staying on top of such mundane tasks.  Mental illness can too.  Certainly for some people with mental illness, they can find it therapeutic to do those things but for others, it is simply too much.  For some, their illness can be affected by the state of their home, but for others illness almost keeps us from seeing the obvious.  Actually I have no difficulty in seeing the obvious today.

We need to find ways of being kind to ourselves.  I could choose to beat myself up about what I can’t do right now.  It would make sense as more than likely I am going to be judged by it shortly. But this time I’m trying not to get stressed.  If cleaning happens, it happens… and I’ll probably spend the rest of the week in bed.  If I can’t do it, so be it.  It won’t be the end of my world.

And now comes the big question… do I publish or not?  This is, afterall a post about housework and my unclean house.  Can I swallow the pill of shame in order to say out loud that this happens.  It’s real.  Actually I bet it’s real for many more than just me.  Maybe it’s not the housework.  Maybe it’s some other mundane reality of chronic illness.  We can talk about the illness, but there’s more to it than just symptoms.  There are all the realities of just keeping life going.  The best we can do for each other is to be real about them.

“When you argue with reality, you lose, but only 100% of the time.”

― Byron Katie

Love Doesn’t Cure Mental Illness

This week, not surprisingly, there has been a whole lot of talk on our screens about mental illness and suicide.  Having those subjects ‘out there‘ is a good thing, but I can’t deny that unwise words and ill-formed arguments have not helped anyone, most especially those personally affected by the tragic death of Robin Williams, and also importantly, those people struggling with their own mental illness battles and suicidal thoughts.

I read a lot that I really wish I hadn’t read, but one article I came across perhaps summed up the issues for me more than ever.  I have shared that article in several places but if you haven’t seen it I urge you to read the wise writings of Molly Pohlig:

When the Illness You Live With Becomes Breaking News
(I Bet Robin Williams Knew He Was Loved. Unfortunately, Love Doesn’t Cure Mental Illness)
http://www.slate.com/blogs/xx_factor/2014/08/12/robin_williams_and_mental_illness_when_depression_is_breaking_news.html?wpsrc=sh_all_dt_tw_bot

One thing we perhaps know from this week, is that fame, fortune, a great sense of humour, laughter, family and perhaps above all, love does not cure mental illness.  Robin Williams appeared to have all these things.  Depression is not magically spirited away by the possession of such things, and the struggle with suicidal thoughts is not relieved.  Oh, that it could be.  Wouldn’t it be great if mental illness was so easy?

If love were enough, my depression would have been cured years ago.

If love were enough, along with maybe a plate of my favourite food of course,  then perhaps my Anorexia would never have got the dangerous point it did, not to mention halting the permanent damage it did to my body.

If love were enough, I wouldn’t have struggled with chronic suicidal ideation for so long, several times plunging my body close to death.

If love were enough just maybe Borderline Personality Disorder (BPD) would never have become the major stumbling block in my life that it is.

And perhaps finally, if love were enough then Post Traumatic Stress Disorder (PTSD) would have been cured.  But then for me PTSD was triggered into a perhaps worse state by the presence of love in my life.  Now that’s confusing if you believe love will solve all.

Love certainly made the last 20 years of my life better than it would have been without it, but only because in spite of the pain I was in, I knew someone cared and perhaps I wasn’t quite as alone as I felt.

But love didn’t fix the pain for me.  It didn’t cure my mental illness.  I had a family surrounding me who loved me.   It was hard for them to know that their love couldn’t fix me.  I guess that hurt like hell.

As I have said before (An Apple Never Falls Far From The Tree), I tried very hard to prove for myself that my family didn’t really love me.  They did.  I can’t deny that.  Some of them (at least) probably thought they could help me if they could just love me a bit more and provide for the needs I had.  Maybe to sit down with me and watch a Robin Williams’ movie to make me laugh for a while.  I should say that just because I might laugh, doesn’t mean I am cured either.

I had friends who loved me, and though I tried very hard to push them away, some of those people are still my friends today.  No, they didn’t cure me, but they’ve stayed in for the long haul.  Mostly they simply kept being there.  But that didn’t cure me.

And then there was my marriage where for years a dedicated and caring husband tried harder than you could imagine to love my suffering away.  No one could fault him for the effort he made during what were the worst years of my suffering.  Strangely, the more he loved me, the more I kicked up my heels and pushed him away.  He loved me so much yet it wasn’t enough to save or cure me.  In the end was a broken marriage and still a mentally ill woman.

Why?  Obviously this is just my opinion but I think the reason my ex-husband’s and others’ love, weren’t enough to cure my mental illness was because:

I knew that I was unlovable

It wasn’t that I felt unlovable, but that I knew I was unlovable.  It is that certain.  I knew in my heart.  From my earliest days I knew I was unlovable, and actually I would go so far as to say that I knew this before I was born.  That might seem extreme and you’ll have to do without the reasons this time.  Some things are too private.

All the love around me meant nothing to me because I knew that it couldn’t be real, and I knew that eventually I would prove it to be false.  There was no way (in my mind) that those people really could love me like they said.  It just wasn’t possible.  I knew.

It’s certainly not the fault of the people who tried to love my mental illness away.  They didn’t understand that their love meant little because I was unlovable.  I couldn’t have explained it if I tried and so instead, the more they loved me the more of a fake I felt.  The more guilty I felt for not getting well.  This was not something any of them could fix.  It just was.

While I needed the love they were offering,  it was never going to be enough to cure my mental illness.  I can’t speak for others and I don’t pretend to.  This post is about me, and not the thousands who suffer from mental illness.  I can’t say if more love would have saved Robin Williams’ life.  In spite of many contrary opinions voiced this week, I believe that only he could have said what, if anything, could save his life.  And I suspect that he, like me, didn’t know if anything could cure us.

Mental illness affects different people differently.  And what is needed to cure it, if indeed that is possible, varies. To generalize simply isn’t fair on anyone.  I simply know that love was never going to cure me.

Thank you to those who tried to make love enough.  I am lucky to have you on my side and I’m sorry if I disappointed you.  There was nothing wrong with your love, it just was never going to be enough.

I saw a meme yesterday which said that love can cure everything.  I don’t believe that.  If only it were so easy.

“That’s the thing about depression: A human being can survive almost anything, as long as she sees the end in sight. But depression is so insidious, and it compounds daily, that it’s impossible to ever see the end.”

― Elizabeth Wurtzel

 

Please Understand What It’s Like To Be Me (…Or A Giraffe)

Cate Reddell:

This is my latest post on A Canvas Of The Minds.

Originally posted on A Canvas Of The Minds:

Cate

Click to read Cate’s bio

TRIGGER WARNING:Discussion of issues related to Eating Disorder recovery. No numbers involved.  

Also, there is a rather nasty animal welfare story mentioned in the first two paragraphs.

I read an horrendous story the other day about a giraffe tragically killed in South Africa recently as it was being transported on a busy highway.  The giraffe was decapitated when the truck it was being transported by drove under an over-bridge.  The giraffe was blindfolded (it makes me wonder if the driver was too), and I think that is standard practise for transporting these animals, to keep them calm (personally blindfolding me will not keep me calm).


Somehow the giraffe was expected to know just when to ‘duck’ as they passed under an over-bridge.  The truck driver blamed the giraffe for its own death. It seems to me that the driver totally failed to…

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Raining Down

There is a Ukrainian orphanage not far from the site of the debris from Malaysian Airlines MH 17.  This week the staff have had to send away 200 plus children from the orphanage to somewhere the children “could heal”.  Last Thursday as the children were playing in the fields next to the orphanage, bodies started to rain down around them.  Not just bodies but body parts.  Can you imagine that?  For the life of me I can’t imagine bodies falling from the sky around me.  I am thankful that I can’t imagine it.  But these children will always know.

In all the horrific news this past week, this story really struck me.  Firstly the innocence of children being caught up in the wars happening on our planet.  But more so because these children live in an orphanage and by that sheer fact it is reasonable to assume that they have already suffered more trauma than any person should.  And now to have to be sent away from their ‘home’ so that they can heal from more trauma just seems so wrong to me.  These children deserve the protection of adults, yet it is adults who are making these wars.

Another news story and children were playing hide and seek on the beachfront of Gaza when missiles launched in hatred rained down on the children, both killing some and injuring others.  Again, children who should be safe.

There has been so much tragedy, affecting thousands of innocent people.  And it continues.  What scares me perhaps most is that this becomes common place.  That we somehow become comfortable with the bloodshed.  Of course those affected personally, those who have lost loved ones, they will never become comfortable with it.  But what about the rest of us?  Do we just become used to this?  Please god, no!

If my counting is correct, there have been three planes down this past week.  Three planes too many.  A quick search on the net today tells me that something like 15 planes have been shot down since the 1980s.  I admit I don’t remember any of them.  When the tragedy of MH17 is foremost in our minds this week, it is hard to imagine that we could forget.  But we will.  We will move on and there will be some other tragedy in the news.

I believe that we owe it to the children to remember.  To say this is wrong, and to keep saying it until it is heard.  It is one thing to say that Ukraine and Gaza are so far away.  “What can we do?”  “It was not our playing fields where bodies rained down on innocence.”  That is so true, but it could easily have been our children, our people.

I do not believe that war is the answer in any of these situations.  Bloodshed of innocent people is just wrong.  And if we don’t start saying it more, then no one is going to hear.

I feel heartbroken by what is happening in our world.  I can’t bear to watch news reports. Like reports of  lines of hearses in The Netherlands yesterday waiting to take bodies away for identification.  Recently I haven’t been able to cry, even though there have been plenty of things to cry about.  Simply there have been no tears.  But now I cry.

It would be easier to not watch the footage.  It would be easier to say “it’s too hard to watch” but I think I owe it to the victims to watch.  More so, I think I owe it to the victims to speak out and say that this is wrong.  There has to be another way.  I believe that way is peace.  And if we, the relatively unaffected, don’t say so then who will?

“If everyone demanded peace instead of another television set, then there’d be peace.”

— John Lennon

 

An Apple Never Falls Far From The Tree

Image credit: Wikipedia.com

Caution: This post contains a (small) mention of self harm and eating disorders.  Read at your discretion.

Today my family are gathering together.  No special reason, except that it is a rare opportunity when we are all in the same place at the same time.  My memory is a little hazy but I’m guessing that it is about 18 months since we have been altogether.  Of course, one important person will be missing.  My father who died over three years ago is a very big absence in the room.  Perhaps especially because Dad was always my reason for being part of the family.  Now I feel a little lost without him there.

Family gatherings are something I find hard.  I have fallen near the tree yet I struggle to find a place for myself amongst that basket of apples.  I don’t fit.  Perhaps I should say I don’t feel I fit.  Actually I have never felt I belonged there.  I guess, that I have felt an outsider in so much of life, and the family context is just one more.

In the past I have tried very hard to get my family to reject me.  I grew up with this notion of unconditional love, which I didn’t believe really existed and also didn’t really understand.  I spent years doing and being something that I expected my family would reject.  I would prove that this unconditional love thing was a hoax.  To my surprise, they didn’t reject me.  Perhaps they didn’t like what I did always, but they never rejected me.  I admit I was surprised.  I was sure I could prove them out, but I never did.  For some reason, largely beyond my understanding, they kept on loving me.

I’m not at all sure that they necessarily like me, or actually ever liked me, but that is a different thing than love.

I don’t fit.  I’m not sure that I fit anywhere in this planet (except maybe surrounded by another family of stuffed animals) and so when I am in a group (whether it is my family or any other) I feel out of place.

While my siblings were creating marriages and families (very lovable families at that), I was creating a canvas across my body of places I had dragged the razor blade, not to mention destroying my own marriage.

When they were building careers, I was focussed on starving myself  and plans for death.

When they were building lives, I was gradually destroying mine.

Admittedly I am not in that destruction phase now, but I know it still hovers not far from the distance.  That’s just what chronic mental illness does.

When their children are growing up (fast), I am by choice, alone.  I don’t know how to be anything else, nor do I think I want to.

My life has turned out (so far) very different from my family.  Practically, I have no idea what to talk about with them.  My interests, let alone my goals are so very different.  But more than that, I just feel like I have no right to belong.  My achievement for life is to still be living today, and while that is big for me, I know it is not easily comprehended by others.  Nor is it something to talk about around the dinner table while the children play.  It’s a conversation stopper rather than anything else.  I just don’t know how to fit into the conversation in the room.

I’m more comfortable outside with my good canine friend Duncan.  He will no doubt be locked in his kennel today, to protect unfamiliar children and Grandma who risks being knocked over in his exuberance and friendliness.  Frankly I would almost be happier out in the kennel with Duncan.  He’s not worried about social niceties, careers and school reports.  He’s not worried about having conversation.

But it’s not like that, is it?  I can’t hang out in the kennel, and to be honest sometimes Duncan’s kennel needs some ‘housekeeping‘.

It’s another time when I have to be with the people, yet I feel so out of place.

My family are good people and I know they love me.  I want, and need them in my life.  I’m still not convinced that it’s unconditional love but I’ve stopped trying to prove that.  I’m not sure that humans are capable of unconditional love, but maybe that’s another topic.

I know my family have suffered in a different way, during the years of my destruction.  But they seem to have little understanding of my life of chronic illness, both mental and physical.  We are two types of apples, from the one tree.  I want to be with my family today, but yet again I have no idea of how to be with them.  Somehow Duncan is so much easier.

“The boughs, without becoming detached from the trunk grow away from it.” 

― Victor Hugo, Les Misérables

“That’s Nice, Dear”

Excuse me for a moment while I rant.

Here’s a bit of free advice.  Well, anything here is free but this is worth taking if you’re not too strong in the ‘wise‘ department.  Don’t under any circumstances say “that’s nice, dear” to anyone unless you’re absolutely sure that ‘that‘ is actually ‘nice‘.  If you say it just to be ‘nice‘ but haven’t checked whether it is actually nice, haven’t even heard what was actually said, or just making conversation… you’re getting yourself into hot water.  Being told “that’s nice, dear” is not at all nice when ‘that‘ is anything but nice.

What does ‘that’s nice, dear‘ mean anyway?  Nothing.  It’s simply something to say when you can be bothered saying something real.  In other words, it’s not worth saying, so don’t say it.

And just while we’re at it, forget about ever saying “I told you so“.  That might seem obvious but I heard that one this week.

End of rant.

It’s been a trying week in Cate’s world.  A little too much of ‘Cate versus Cate’s mind’.  A few ‘that’s nice,dear‘s didn’t go down too well, especially followed up by “I told you so“.  They never do, but this week I just wasn’t in the mood for meaningless words.  I would rather have had silence.  Actually I always prefer silence.  Silence in a wonderful thing… until you start thinking too much.

I know that it is often said that we should let go of the things we have no control over.  But that is so hard.  I have so much in my life right now over which I have no control, and actually letting some of them go is not an option.  I’m the first to admit that I could let go of some of those things, the problem is that I don’t want to.  Yes, mindfulness would work… if I wanted it to.  That might sound crazy but I’m one of those people who likes to have worked everything out in my mind before I let it go.  I want to understand the puzzle, understand what I could or couldn’t have done differently.  I want to know that others in the situation are okay, and even if I have no control over that, I still want to work it all out in my mind so I can get some peace.  If I simply let it all go, my mind might be easier in some respects but I feel like I don’t have closure.

For a moment, let’s go back to my last post, Claiming My Voice Back.  It wasn’t the easiest to write, let alone press ‘publish‘.  Once I had though, I began to feel pretty good.  I had done it!  It had taken me a year (minimum), but I had finally done it.  That felt good.  But then I started thinking, because in that situation of my atrociously awful internet relationship there are a whole heap of unanswered questions, which ultimately I have to simply let go.  I’m never going to be able to know for sure.  I know that, yet my mind that wants to ‘work everything out‘ wants the answers anyway.  So by the next day my mind was spinning wildly.  And frankly, it was making me emotionally sick.

It’s a bit like when you know you want some more ice cream, but you know you’ll explode if you eat anymore.  You give in to one side of your brain, and end up later feeling sorry.  I did this to myself.  I made myself emotionally sick , yet I couldn’t stop trying to piece together the puzzle.

The other issue in ‘the things Cate can’t control‘ discussion, is those things that I might not be able to control, yet backing away isn’t an option.  Just sometimes we have to stay in the situation anyway.  Those times are hard.  I’m not sure if I’m sitting waiting for the train wreck in front of my eyes or just watching the sun go down.  The one thing I know is that I can’t back away or for that matter, turn my back.  It’s really hard to handle those situations.  Much as I like having control in my life, I realise that I can’t have control over everything (damn it!) and I have no control over the lives of those I love.  I simply have to watch.

With all these things going on this week, I’m starting to think I need some help.  The atrociously awful internet relationship has had a huge impact on my life in so many ways, and while I have dealt with so much of that in the past year, I am still find it incredibly hard to trust people.  Anyone.  Fairly intense paranoia would be a good description and I can feel myself pulling away from humankind.  I realised this week I might just need some help with this.  Maybe I can’t do it on my own.  So I’m thinking about whether to go back to therapy for a while.

I’ve done a lot of therapy in the past and I don’t think I need anything long-term, but I am starting to realise that I can’t do this alone.  It is too big.  Too much went terribly wrong and it’s finally dawned on me that it is too much for this one woman.

I’m not sure how I’m going to make therapy happen, but I realised one thing this week…

When something bad happens in my life, I can use it as an excuse to destroy me… or I can get back up, tend the wounds and keep going.

If more therapy is what I need to be able to keep going, then I will find a way to make that happen.

And if anyone says “that’s nice, dear“…

“Another page turns on the calendar, April now, not March.

………

I am spinning the silk threads of my story, weaving the fabric of my world… I spun out of control. Eating was hard. Breathing was hard. Living was hardest.

I wanted to swallow the bitter seeds of forgetfulness… Somehow, I dragged myself out of the dark and asked for help.

I spin and weave and knit my words and visions until a life starts to take shape.

There is no magic cure, no making it all go away forever. There are only small steps upward; an easier day, an unexpected laugh, a mirror that doesn’t matter anymore.

I am thawing.” 

― Laurie Halse AndersonWintergirls